If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Lisa, updated info?

Collapse

About the Author

Collapse
Abbygirl2 Find out more about Abbygirl2
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    Lisa, updated info?

    Hi, I was again flipping through the information sheets given to me by my cardiologist a few years ago and was pleasantly surprised to see your name. (The info is from a website).
    However I noticed that it was dated June 1996. I am wondering if there has been significant updates of information since then and if maybe I should send him some new info. I go to the Health Sciences Centre in Winnipeg, Manitoba. (I was going to call you today but ended up in bed with a gallstone attack)
    Thanks
    It's not what you gather, but what you scatter that tells what kind of life you have lived.

    Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.
    Tags: None
  • #2
    Re: Lisa, updated info?

    I hope you are feeling better! The 1996 site was the 1st "run" of the site and the information has changed a great deal since then. I am glad to see that your docs were aware of the HCMA - but I think they need some updated information, send us their mailing address and we can send them new data.

    Be well,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    Previous template Next

    Today's Birthdays

    Collapse
    Working...
    X