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Lisa, updated info?

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  • #1

    Lisa, updated info?

    Hi, I was again flipping through the information sheets given to me by my cardiologist a few years ago and was pleasantly surprised to see your name. (The info is from a website).
    However I noticed that it was dated June 1996. I am wondering if there has been significant updates of information since then and if maybe I should send him some new info. I go to the Health Sciences Centre in Winnipeg, Manitoba. (I was going to call you today but ended up in bed with a gallstone attack)
    Thanks
    It's not what you gather, but what you scatter that tells what kind of life you have lived.

    Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.
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  • #2
    Re: Lisa, updated info?

    I hope you are feeling better! The 1996 site was the 1st "run" of the site and the information has changed a great deal since then. I am glad to see that your docs were aware of the HCMA - but I think they need some updated information, send us their mailing address and we can send them new data.

    Be well,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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