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Progress post transplant

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Midge Rollins Heart transplant March 04. Prior to that I had Hypertrophic Cardiomyopathy. I am an independent Norwex consultant. Visit my web site www.midgerollins.norwex.biz Find out more about Midge Rollins
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  • Progress post transplant

    Thank you to my wonderful daughter for thinking of you while I was unable to. And thank you members and friends for notes, prayers and thoughts. It has been 11 days with out HCM and the hardest thing for me is to not still be on those HCM meds of course I ahave about double that now but in time that will go down some. I am doing pretty well, other than the anti rejection drugs have attacked my kidneys and that is causing the biggest concern right now. They are on top of it and will control with other drugs etc. So, I am staying in hospitlal a little longer than anticipated. Then i WILL move to the Transplant house and finish up to at least 3 months living there. I will have a care giver while there so between friends and husband I will be taken care of . The place is really awesome Even though the road is not been without a bump or 2 I truly believe with time it will smooth out. My call came sooner thanI had expected I figured 2004 but not so soon. The only donornews I know is it was younger male smallish as I am a small female. I will be writing a huge thank you to the donor network to pass onthe family. I will keep you all up to date. One thing I still have is impatience to get well. So any of you Mayo pt's that are in town in the next 3 months look me up at the Gift of Life Transport House. Thanks again and just because I am no longer HCM you will all be in my thoughts and prayers and will continue to read the board.
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

  • #2
    Re: Progress post transplant

    MIDGE!

    I'm so happy to hear from you. I hope your road to recovery is as smooth as possible!

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: Progress post transplant

      GLAD TO HEAR YOU ARE FEELING WELL!!

      Big hugs!

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: Progress post transplant

        Midge,

        I am so thrilled to hear from you on the board! Best wishes for your continued recovery!!

        Congratulations!
        Lynn
        Lynn Stewart
        HOCM 4/2002
        Cleveland Myectomy Crew 8/2002

        Comment


        • #5
          Re: Progress post transplant

          Midge, what wonderfull news to hear from you directly and that you are progressing nicely. Keep up the great work . You are in my thoughts and prayers daily. Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

          Comment


          • #6
            Re: Progress post transplant

            so glad to hear from you! hoping for a speedy recovery

            sandy

            Comment


            • #7
              Re: Progress post transplant

              Midge, It's great to hear from you. I'm so pleased for you that you have been able to find a spot in the Transplant House, that place is wonderful. Anyone who's never had reason to learn about Ronald McDonald House, Transplant House, etc, have no idea just how much those places mean to a recovering patient. A hotel room just doesn't compare. Take care and keep us posted, Linda

              Comment


              • #8
                Re: Progress post transplant

                Midge

                That is great news lady, keep up the positive attitude and that will take you a long way

                Shirley
                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                Comment


                • #9
                  Re: Progress post transplant

                  Hi Midge,
                  Those three months at the Transport House will fly by – in just three years or so (ay least that’s the way it will seem.) You are an intelligent women with an active mind so think of something to fill your time while you’re locked in – and don’t forget to heal. After that you probably will be monitored fairly closely for some time, but you’ll have a full happy life to live. I think that’s absolutely marvelous.
                  Burt

                  Comment


                  • #10
                    Re: Progress post transplant

                    Hi Midge,
                    I'm so happy that you are on the road to recovery...
                    you're in my thoughts and prayers

                    Cynthia
                    \"It is not length of life, but depth of life.\"

                    Ralph Waldo Emerson

                    Comment


                    • #11
                      Re: Progress post transplant

                      Midge,

                      Glad to see you were able to steal some doctor's laptop when he wasn't looking and get online to write to us! We've all been thinking about you here, and even though you're a non-HCM'er now, we still expect you to come and hang out with us from time to time

                      Take care of yourself,

                      Jim
                      "Some days you're the dog... some days you're the hydrant."

                      Comment


                      • #12
                        Re: Progress post transplant

                        Dear Midge,

                        Congratulations! We will be praying about the kidney problem and for a wonderful, restorative time until you are out and about.

                        Rhoda

                        Comment


                        • #13
                          Re: Progress post transplant

                          Midge, really great news, I guess you can't wait for the healing process to finish and your new life to start.
                          Good Luck.
                          Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                          So if you are capable of thought then you are capable of great things
                          Good luck and stay well.
                          Glen

                          Comment


                          • #14
                            Re: Progress post transplant

                            Midge,
                            Great news. I will keep you in my thoughts and prayers. Please keep us informed of your progress.


                            Take care,
                            Chuck B
                            Chuck B

                            An inch is a cinch, a yard is hard

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