If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

leg pain related to hocm?


About the Author


mimoo55 Find out more about mimoo55
  • Filter
  • Time
  • Show
Clear All
new posts

  • leg pain related to hocm?

    Hi All,
    I am fairly new here. My husband is 50 years old diagnosed with hocm. He began having symptoms when he was 46 years old. He saw a cardiologist for over 2 years and was told he was out of shape and there was nothing wrong with his heart. He was diagnosed about 2 years ago with hocm. His symptoms became so severe he was physically limited and could hardly do any activity. He was referred to a hcm specialist in St. Louis and has had septal alcohol ablation last November and is doing very well. His main complaint now is fatigue. Also, his legs hurt at night and he is not able to hold them still when he goes to bed. Would the legs hurting be related to hocm? He is taking 100 mg. of Toprol XL daily.
    I would appreciate any insight.


  • #2
    Re: leg pain related to hocm?

    Likely not, although it is not the first time I have heard such a complaint. I would suggest he discuss it with this cardiologist and family doc and see if they have some ideas.
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Re: leg pain related to hocm?

      Yeah, I’m 71 and get leg pains now and again – especially if I push walking too far – I have circulation problems. I also have times when I get into bed and can’t keep my legs still. I found out that this is a fairly common condition which has nothing to do with HCM. Have him talk to his PCP and see if there is anything they can do for him. Myself, I just ease off for a couple of days and the problem goes away.


      Today's Birthdays