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leg pain related to hocm?

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  • #1

    leg pain related to hocm?

    Hi All,
    I am fairly new here. My husband is 50 years old diagnosed with hocm. He began having symptoms when he was 46 years old. He saw a cardiologist for over 2 years and was told he was out of shape and there was nothing wrong with his heart. He was diagnosed about 2 years ago with hocm. His symptoms became so severe he was physically limited and could hardly do any activity. He was referred to a hcm specialist in St. Louis and has had septal alcohol ablation last November and is doing very well. His main complaint now is fatigue. Also, his legs hurt at night and he is not able to hold them still when he goes to bed. Would the legs hurting be related to hocm? He is taking 100 mg. of Toprol XL daily.
    I would appreciate any insight.

    Paula
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  • #2
    Re: leg pain related to hocm?

    Likely not, although it is not the first time I have heard such a complaint. I would suggest he discuss it with this cardiologist and family doc and see if they have some ideas.
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: leg pain related to hocm?

      Yeah, I’m 71 and get leg pains now and again – especially if I push walking too far – I have circulation problems. I also have times when I get into bed and can’t keep my legs still. I found out that this is a fairly common condition which has nothing to do with HCM. Have him talk to his PCP and see if there is anything they can do for him. Myself, I just ease off for a couple of days and the problem goes away.
      Burt

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