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mtlieb Find out more about mtlieb
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  • mtlieb
    replied
    Re: Stress Test Questions

    Yes, thank you.... i always get the two centers mixed up! Hey, they're both in Minnesota

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Stress Test Questions

    Jim - We will chat soon - FYI Barry Maron is at the Minneapolis Heart Inst. (about 1 and a half hour drive from Mayo)

    Take care

    Lisa

    Leave a comment:


  • Reenie
    replied
    Re: Stress Test Questions

    Jim, you know what I'm going to say.... Take care of yourself. The drop in blood pressure concerns me. That and the fainting lead me to think obstruction, and that must be fixed. (Remember, my friend, I'm just an interested party. I'm not a doc!) Do what ya have to do!

    Reenie

    PS, you know we're here for ya no matter what!

    Leave a comment:


  • Cynaburst
    replied
    Re: Stress Test Questions

    Hey Jim,

    I will take a stab at these for you....

    Re: blood pressure dropping during exercise - that is one of five or six risk factors for sudden death. The others are history of fainting (which is why everyone is so interested in this), family history of sudden death, esp. at a young age, multiple repetitive v-tach on holter monitor, and maybe one or two more that aren't coming to me at the moment. Oh yeah, very thick septum is one... Search the archives...all are listed there.

    Anyway, in order to be considered to be high risk of sudden death, you need two or three of these factors. You seem to be like me, sort of in the middle.

    When your doc says that the drop in blood pressure isn't that meaningful, I think that he means that the risk of sudden death is higher before age 40. If you reach age 40, the risk goes down because you are already out of the highest risk zone.

    After lots of testing, I went from being low risk to needing an ICD.

    Its just how things added up.

    I agree your doc sounds like he knows what's up. Btw, Barry Maron is at the Minneapolis Heart Institute....not Mayo. Close but not exactly Rochester.

    Hope that helps. Good luck in finding a solution.

    Best,

    Cynthia

    Leave a comment:


  • mtlieb
    replied
    Re: Stress Test Questions

    Hi All,

    LISA: I'll send you a PM with my new contact information and we'll set something up if you wanna chat.

    REENIE: I've done a bit of research following your post and every site i read seems to say the same thing... ANY drop in blood pressure during a stress test is considered abnormal, regardless of age. In fact, even if it just stays the same, it's considered bad. Perhaps my specialist realizes this however (he's really quite good), but simply doesn't feel that this one factor alone puts me at risk. I'll know more after we discuss the official results when they're ready, hopefully tomorrow.

    QUESTION: Is a drop in blood pressure during exercise fairly common in HCM'ers in general, or only among those considered to be at risk from sudden death? Also, why do all my doctors seem to be interested in the fact that i used to pass out all the time in my teens? It hasn't happened in over twenty years, so obviously whatever caused it is no longer a factor?

    I really like my new specialist quite a bit, and feel confident in his treatment of me. Every single technician or doctor i meet at the cardiac unit there tells me he would be their first choice if they were in my shoes. He's also pretty well connected... best friends with Dr. Barry Maron at Mayo, and he works closely with Dr. Lever in Cleveland, where he sends most of his myectomy candidates.

    Jim

    EDIT: Oops! I meant to say Minneapolis Heart Institute, not Mayo here. Thanks for correcting me

    Leave a comment:


  • Linda
    replied
    Re: Stress Test Questions

    Jim, Call Lisa. What else can I say? There's no sigh face in the emoticons. Linda

    Leave a comment:


  • Brownie
    replied
    Re: Stress Test Questions

    Jim,

    I enjoyed reading your account of your test. Isn't it strange that something that should be so straightforward can get so complicated. Anyway, I'm glad for you that it's behind you at last. Surely they wouldn't call you back to do the test again unmedicated when they saw what happened while you were on meds?

    Take care.

    Abby

    Leave a comment:


  • Reenie
    replied
    Re: Stress Test Questions

    Jim, glad you made it through the stress test all right. I don't know the stats, but I would think that your blood pressure dropping is NOT a good thing, regardless of your age. Take care of yourself.

    Reenie

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Stress Test Questions

    Jim,
    I think it is time we had a chat - I am not sure what your phone # is now - I think the one I have goes back a few moves.
    Give me a call please.

    Be well,
    Lisa

    Leave a comment:


  • Pam Alexson
    replied
    Re: Stress Test Questions

    Hi Jim, Glad that day is over for you. Somehow I suspect that given your gradient and all your symptoms, that the results will impart mostly the same outcome medicated or not . When you are up there in those ranges of obstruction I from my experience believe that that good ole beta blocker is just keeping your heart relaxed just enough to keep you on your feet and able to function minimally. My thoughts purely from already having taken that trip to "Disney World " myself, ( pun intended). Rest well Jim . Pam

    Leave a comment:


  • Burton Borrok
    replied
    Re: Stress Test Questions

    Straaaaange things are happening – but isn’t it great you lived to tell the tale? Next I expect your doctor will want to do it again – unmediated – and the hospital will have another fit. Some days are just like that.

    I picture a man lying under a tree with a bird on a branch over him. The caption reads, “Go ahead – everybody else does.” Thank G-d you have a sense of humor.
    Burt

    Leave a comment:


  • shirleymahoney
    replied
    Re: Stress Test Questions

    Jim

    I have news for you my primary doctor didn't know i was having surgery until he recieved the refferral for the insurance company, so i called my cardio doc and said it was very important he keep my PCP doctor informed about me in case of an emergency, he would be the one called first, you had a typical HCM day huh, it's all a mystery isn't it

    Shirley

    Leave a comment:


  • mtlieb
    replied
    Re: Stress Test Questions

    Thanks all,

    It's fine really. I didn't mean to make it sound like a huge traumatic drama or anything... i just thought you'd enjoy reading about it, since we have all had so many of these same experiences. It's more funny now than anything. Just another very odd day in the life of your very odd friend, Jim. LOL.

    Rhoda, i plan on doing just that! Thanks for the note. And yes Mongo, one would think that the two docs would have talked beforehand. But what irked me most, was that all this guy had to do was wait for my specialist to arrive before they unwired me and sent me on my way. It would have saved a lot of time and irritation (and put food in my belly faster)

    Jim

    Leave a comment:


  • mongo_jones
    replied
    Re: Stress Test Questions

    man! you'd think the two docs would talk before you went in! it really boggles my mind the degree of disconnect there is in the medical profession.

    Leave a comment:


  • Laoshur
    replied
    Re: Stress Test Questions

    Wow, Jim,

    That's is terrible! I am glad you are still alive to tell us about it! However, maybe it shows the degree to which no one knows what to do for us or with us.

    Please rest today (well, tomorrow there) and let your body catch up!
    Rhoda

    Leave a comment:

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