[Metabolic disorder causes Hypertrophic Cardiomyopothy?]

Author: Stacy (---.bsmr.uswest.net)

Date: 05-13-02 21:26

Hi Guys,

We just returned from MAYO clinic and found that Aspyn has a metabolic, mydocondrial, and lactic acidosis disorder. Am I understanding this correctly that these problems are what is causing the thickening and enlarged heart? Is there anyone else on this board that knows any one who has a similar disorder? We started a BUNCH of medicines and vitamins, they did a muscle biopsy and skin biopsy, EEG, and lots of blood work. We will be returning to MAYO in July. If any one has any info on this please let me know. Thank You!

Stacy, Wayne, and Aspyn

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[Re: Metabolic disorder causes Hypertrophic Cardiomyopothy?]

Author: s. beckley -moderator (---.dsl.mindspring.com)

Date: 05-14-02 13:12

Dear Stacy,

I was poking around the web and it seems there are a bunch of these disorders, or related disorders, so I can't really tell you anything about it without knowing the exact name. The Merck Manual and emedicine were the sites where I found some info on stuff that sounds related.

How is Aspyn feeling?

I'm glad you got to teh Mayo.

Sarah

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[Re: Metabolic disorder causes Hypertrophic Cardiomyopothy?]

Author: jess howland (---.customers.uswest.net)

Date: 08-04-02 17:29

I'm very curious to see what you have found about this metabolic disorder causing HCM. What website or information did you research? I would like to learn more about this type of studies, as they may reveal useful information for me.