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  • Monday...

    Hey, i havnt been on here in a while but some of you know my story. On monday i leave to go see dr. maron in minneapolis. wish me luck! im kind of scared, i dont really want to go just because i dont know what they'll say and im sick of being in doctors offices, yaknow. SO, we'll see.
    \"The heart swells at the magnificance\"

    1 timothy 4:12: Do not let others look down on you because you are young, but set an example for believers in speech, in life, in love, in faith, and in purity.

  • #2
    Re: Monday...

    Best of luck, Janelle!

    I hear he's one of the top doctors....Dr. Barry Maron?? I go to Dr. Martin Maron, his son in Boston ....you'll be in great hands...let us know how you make out....take care

    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson


    • #3
      Re: Monday...

      I'm sure everything will be fine. Just might not be what you want to hear. Just know you are in good hands with Maron.

      I hope our chat previously helped!

      Mary S.


      • #4
        Re: Monday...

        Best of luck, Janelle- Dr. Maron is THE world authority on HCM so you are in the very best of hands. Let us know how things go!

        I know what you mean about all the doctor visits! Our daughter Caitlyn is up to here (me, pointing at my neck) with them as well. Just go with the flow girl!

        all best,



        • #5
          Re: Monday...

          Janelle, Best of luck , you are in the best hands , he is a guru of HCM. I've never met him but he raised one heck of a smart and caring son . So he must be doing a lot of good things right as we all know from his great work on HCM. Take Care. Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


          • #6
            Re: Monday...

            Which Maron was it? Either one... you're in great hands!
            Let us know how things went.
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)


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