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Hello All -
I took Keanu (who turned three today) to his E.P. on the 1st of March and he told me that he is thinking about taking Keanu off of the disopyramide (the anti-arrhythmic medicine). I don't understand why he would do this. He told me that his last three or four holtors showed nothing out of the ordinary, but wouldn't that be because Keanu is taking the disopyramide? They haven't increased either of his meds in such a long time and that concerns me also because Keanu is growing. The E.P. did say that the doses are very low..... He actually wants me to give Keanu his propranolol three times a day instead of just twice a day. This medication says to administer it evenly throughout the day.... Does that mean I need to give it to him every eight hours (which would include waking him up at night) or divide the number of hours that he is actually awake by three? We still have his sedated echo to go to on the 10th and then we see the other cardiologist (who brought up the possibility of the septal myectomy). I am anxiously waiting to hear the results/discoveries of that echo before contacting his insurance regarding the possibility of taking him to the Cleveland Clinic. My sister-in-law works in the adult cardiology department at the Cleveland Clinic, so at least I know we'd have a place to stay....the problem would be getting me and all of my kids there (I couldn't leave them here because my husband would still need to continue working). Anyway....I guess I had better get to bed.... I just had a baby on the 10th of February and he is sleeping, so I should take Keanu and get the both of us to bed before Gavin wakes up to eat.
I'll post again after the echo on Wednesday. I hope this finds everybody doing well.
Good night.
SheliRenee
I took Keanu (who turned three today) to his E.P. on the 1st of March and he told me that he is thinking about taking Keanu off of the disopyramide (the anti-arrhythmic medicine). I don't understand why he would do this. He told me that his last three or four holtors showed nothing out of the ordinary, but wouldn't that be because Keanu is taking the disopyramide? They haven't increased either of his meds in such a long time and that concerns me also because Keanu is growing. The E.P. did say that the doses are very low..... He actually wants me to give Keanu his propranolol three times a day instead of just twice a day. This medication says to administer it evenly throughout the day.... Does that mean I need to give it to him every eight hours (which would include waking him up at night) or divide the number of hours that he is actually awake by three? We still have his sedated echo to go to on the 10th and then we see the other cardiologist (who brought up the possibility of the septal myectomy). I am anxiously waiting to hear the results/discoveries of that echo before contacting his insurance regarding the possibility of taking him to the Cleveland Clinic. My sister-in-law works in the adult cardiology department at the Cleveland Clinic, so at least I know we'd have a place to stay....the problem would be getting me and all of my kids there (I couldn't leave them here because my husband would still need to continue working). Anyway....I guess I had better get to bed.... I just had a baby on the 10th of February and he is sleeping, so I should take Keanu and get the both of us to bed before Gavin wakes up to eat.
I'll post again after the echo on Wednesday. I hope this finds everybody doing well.
Good night.
SheliRenee
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