If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • Just Hello

    [Just Hello]

    Author: Laura (---.proxy.aol.com)

    Date: 05-13-02 00:15

    Hi,

    I have HCM. I was diagnosed two years ago. After two years of frustration and many symptoms, I drove myself to the Mayo Clinic where I was diagnosed with a rare form of HCM. I visited the Cleveland Clinic to seek their opinion also.

    I am on full disability. I was an elementary school teacher for 15 years. A few years ago I finished my masters degree in administration. I am very lucky to have wonderful insurance. Social Security and my own long term disability insurance have maintained my family's lifestyle.

    I have seen some of the best doctors in the country. I am so happy to be alive. Currently, I take Coreg. I still have shortness of breath, tire easily, dizziness and tightness in my chest.

    I am happy to see this forum and wish all of you happiness. Thank you for allowing me to tell my story.

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    [Re: Just Hello]

    Author: s. beckley -moderator (---.dsl.mindspring.com)

    Date: 05-13-02 00:32

    Dear Laura,

    Welcome to the board/HCMA. Who did you see at the Mayo? I see Dr. Klarich, who I like a lot. Do you continue to visit Mayo or does the Cleveland Clinic follow you?

    I'm very glad you took your care into your own hands. So many people either don't know how or can't do it and spend years and years ill and confused.

    What kind of HCM do you have that is so rare? The Mayo said mine was unusual in that my hypertrophy is up the outside of the left wall instead of inside or in the septum.

    Glad you found us. Can you make it ito the annual meeting?

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Just Hello]

    Author: Susan (---.ceg.com)

    Date: 05-13-02 08:29

    Hi,

    I go to Cleveland Clinic also, who do you see there. I see Dr. Craig Asher. I'd like to get some more info from you about the differences that make the type of HCM you have rare and how you went about getting your disability? You can email me directly at work. ([email protected]) Thanks!

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    [Re: Just Hello]

    Author: Connie (---.proxy.aol.com)

    Date: 05-13-02 22:25

    Hi also.............I too would like to know how you go about getting disability. I work a full time job now and have for years. I think I am good to go for now with the problems I have. But you cant be too sure about the future. There are days when it takes all I can do to get ready for work. If you dont mind my asking, was your disibility approved because of hcm and health problems associated with it? I know there may come a day when i really need it. Any info would be appreciated.........thank you so much and good luck with your battle with HCM..................................Connie
    NOTE: This is a post from the previous forum message board.
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