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mtlieb Find out more about mtlieb
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  • My Appointment

    Hi All,

    Had my appointment with the cardiologist.

    My heart gave the doc a good show today. Usually it seems to quiet down before an appointment and make a liar out of me. LOL. You know how that goes. But i'm having a pretty bad HCM day (week, month) so he got to see and hear all the fireworks.

    My blood pressure was 150/90 which is very high for me. It's usually right around 110/80 or close to that. He reiterated that although we should continue to exhaust all drug options, he isn't very confident that drugs alone can tackle my high gradient (and the symptoms). He's setting me up with a Holter monitor on monday to try and get a better picture of what's going on.

    I kinda get the impression from him that my HCM is on the downward spiral right now. Although the septal wall thickness doesn't really change over the years, he explained that the high gradient puts a lot of stress on different areas of the heart (mitral valve, etc.) and that over time, symptoms can get progressively worse as the ol' ticker wears out. Makes sense i guess.

    He doesn't have any answers for me, but at least he was good enough to come right out and say that, which i respect. He wants me to see a colleague of his at the University of Pittsburgh Medical Center who has apparently devoted his practice over the last ten years specifically to HCM. I'll send a message to Lisa and see if she's heard of him.

    He was also good enough to write a letter to the chairman of my department at school to outline what's been going on. I was in the hospital last week for one of my midterms, and i've been looking and feeling pretty haggard lately. Even the cardiologist today told me i look like crap and asked me if i was using recreational drugs. Yikes! I know i'm no beauty queen these days... but really

    Thanks,

    Jim
    "Some days you're the dog... some days you're the hydrant."

  • #2
    Re: My Appointment

    Jim, Iam glad you are happy with your new doc. It must be nice to have a doc. that will tell you that he is stumped and send you to someone eles. Let us know what the other doc has to say. Just remember sometimes we look better then we feel and sometimes we feel better then we look. I don't know which one is better. Hang in there and have a great day.
    Donna B. HCM & ICD. 2 sons with HCM. Brother passed away from HCM at the age of 39. Mother has HCM.

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    • #3
      Re: My Appointment

      Gosh, Jim. Recreational drugs??? I sure hope you get to feeling lots better soon. Take care and let me know if there's anything I can do.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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