If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

What should I be asking?

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • What should I be asking?

    [What should I be asking?]

    Author: Carl (---.bwc.org)

    Date: 05-12-02 04:43

    Hello all,

    Looks to be a very informed group here.

    Background: Well a few months ago my GP was listening to my heart as part of my annual renewal of blood pressure medication. Asked, has anyone talked to you about a murmer? Well first I have every heard of that (age 44). Well this and that Echo etc. HCM with LV flow tract obstruction. Don't want to gloat but I don't seem to have any of the manifest problems. While I can't run up a hill (could stand to loss 30 lbs.) but am active and can walk 3 miles in an hour no problem. Been taking a Beta-Blocker for the blood pressure the last few years (found out that is good for this condition.) Still taking a number of test to evaluate my condition.

    Question: What questions should I be asking?

    Carl

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: What should I be asking?]

    Author: Bob (---.dyn.optonline.net)

    Date: 05-12-02 20:39

    Hi Carl,

    I, too, have HCM with obstruction, and no symptoms. While absence of symptoms is something to be thankful for, it doesn't mean we are home free. Symptoms may arise at some future time, and even without them, changes may be taking place in the heart which should be monitored and possibly treated. For instance, the outflow obstruction, measured as a pressure gradient (do you know what yours is?), causes the heart to work harder, the workload being related to the level of pressure gradient. The degree of wall thickness, or hypertrophy is another important factor to be considered (were you told this measurement?). These and other factors are evaluated by the HCM specialist in determining the course of treatment. They also are used to determine your risk for sudden death. In my case, an implantable deffibrillator (ICD) with dual chamber pacing was recommended, and I followed that course. The pacing has virtually eliminated my obstruction (though this is frequently not the case), and the defibrillator is there in case an arrhythmia occurs. The best advice I can offer, as is mentioned so often on this board, is that you be evaluated by a recognized HCM specialist. If you aren't aware of who they are, contact the HCMA Office. Also, let me know if I can be of further help.

    Good Luck,

    Bob

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: What should I be asking?]

    Author: s. beckley -moderator (---.dsl.mindspring.com)

    Date: 05-12-02 21:13

    Dear Carl,

    Welcome.

    Please call the HCMA office at 973-983-7429 to get the name of an HCM specialist.

    Your family should all be screened for HCM as it is a genetic disorder. Parents (if they are still here), siblings, and children.

    You should also be evaluated for any risk of sudden death which is treated by the ICD Bob mentioned above. Most people live long healthy lives with HCM, but you don't want to skip this step for obvious reasons. Please see my response to Connie's IHSS post.

    Take care,

    Sarah
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

Working...
X