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TV / computer 6:30pm tonight!!!

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Lisa Salberg Find out more about Lisa Salberg
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  • #1

    TV / computer 6:30pm tonight!!!

    http://www.cn8.tv/channel/channelhom...lChannelID=622


    Logon tonight at 6:30pm EASTERN TIME to www.CN8.tv - Real Life with Mary Ameroso and see our 30 minute interview!

    Stacey and Dr. M. Maron did a great job!! You have to see this!

    Let us know what you all think!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
  • #2
    Re: TV / computer 6:30pm tonight!!!

    Watched and, and I have to say GREAT JOB to the interviewees

    Comment

    • #3
      Re: TV / computer 6:30pm tonight!!!

      Lisa, Stacy and Dr. Maron.
      Wonderful, wonderful, wonderful! The exposure was amazing. Thanks for all your hard work.
      Peace,
      Leon
      God Squad co-moderator
      Nothing is as gentle as strength and nothing is as strong as gentleness

      Comment

      • #4
        Re: TV / computer 6:30pm tonight!!!

        Thanks guys! It was nice to have the oppurtunity to get the word out! We are very grateful to Dr. Maron for making the quick trip to NJ for filming and to Joanne and Lisa S. for getting this organized.
        YOu may have noticed the picture at the end, that was Keith. He passed away last May with undiagnosed HCM. God Bless Keith...and thank you Keith for the doors you opened to so many...others will be helped because of his life. Keith was a police officer, and he is still protecting us today!

        Best to all,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment

        • #5
          Re: TV / computer 6:30pm tonight!!!

          Lisa, the show was great and you all looked and sounded wonderfull. My heart goes out to you both as the loss of Lori will always be evident but what a tribute to her as well. I know she is proud of you and Stacey for going foward with your loss to help so many . Keep up the great work and do not ever doubt what you do for the masses. Just for a minute look at this site alone and see how many people pop in for info. We asked Dr. Maron for his autograph. My oldest daughter was going to ask if he had any autographed pinups of himself but chickened out. One of my friends called and said no wonder you get palpitations! We had a good laugh . Dr. Maron wants my son Tim to send him a picture from his palm recording. He said he'll send it to Hollywood and see if they need a stunt double for Vin Diesel. Heck he looks better then Vin Diesel. He said gee I could do the clinic on Tuesdays and go to Hollywood in between ! He's so funny. Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

          Comment

          • #6
            Re: TV / computer 6:30pm tonight!!!

            Should we have a vote for the cutest HCM Doc. I think M. Maron wins it hands down! Sarah and I have had this discussion before! And what is even better is his heart (no pun intended) is always in the right place when it comes to making decisions. He is an outstanding physician!

            And when I see him on Thursday I will let him know that!

            Mary S.

            Comment

            • #7
              Re: TV / computer 6:30pm tonight!!!

              Mary , you have my vote . And he has a real big heart also. My daughters fight to go with me just so they can drool over themselves when he speaks to them . O.K. so I drool a little myself. Pam
              Dx @ 47 with HOCM & HF:11/00
              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
              Lead failure,replaced 12/06.
              SF lead recall:07,extracted leads and new device 2012
              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
              Genetic mutation 4/09, mother(d), brother, son, gene+
              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

              Comment

              • #8
                Re: TV / computer 6:30pm tonight!!!

                You guys have me rolling with laughter here! You all DO realize that MM reads this board frequently, right? Not that I'm arguing with any of you...

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

                Comment

                • #9
                  Re: TV / computer 6:30pm tonight!!!

                  Yeah Reenie , I know he reads the board but he is always in good humor and knows how we all feel about him . He can read ya like a book and not even turn the pages! I think he'll get a kick out of it. He's like family by now that's how comfortable he makes ya feel. I'm glad you had a good laugh. Take Care, Pam
                  Dx @ 47 with HOCM & HF:11/00
                  Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                  Lead failure,replaced 12/06.
                  SF lead recall:07,extracted leads and new device 2012
                  [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                  Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                  Genetic mutation 4/09, mother(d), brother, son, gene+
                  Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                  Comment

                  • #10
                    Re: TV / computer 6:30pm tonight!!!

                    Oh absoluty, that is precisely why I like him. If anyone can put up with me for a year like he has well he deserves a medal. With this past year I think I have given quite a few doctors nervous breakdowns. Can't imagine what he is going through not being able to actually see all of the test and symptoms. But he sticks to it and as Pam said he is very easy to talk to.

                    OHHH I got it maybe we should start a Dr. M. Maron fan club

                    If ya read this Dr. Maron it wasn't me I promsie. Ok yeah it was but you are one of the best doctors I have ever met (quite a few).

                    Mary S.

                    Comment

                    • #11
                      Re: TV / computer 6:30pm tonight!!!

                      OK Ladies... You are aware I will be seeing MM in a week at ACC and I am growing concerned that his ego may get a little over inflated ... well he just may not fit on the plane if you guys keep it up!
                      I have work for him... if you keep it up I mean it ...he will not fit on the plane!




                      Lisa
                      Knowledge is power ... Stay informed!
                      YOU can make a difference - all you have to do is try!

                      Dx age 12 current age 46 and counting!
                      lost: 5 family members to HCM (SCD, Stroke, CHF)
                      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                      Therapy - ICD (implanted 97, 01, 04 and 11, medication
                      Currently not obstructed
                      Complications - unnecessary pacemaker and stroke (unrelated to each other)

                      Comment

                      • #12
                        Re: TV / computer 6:30pm tonight!!!

                        When I saw M.Maron ar my appointment I told him that we were strating a fan club. Lisa, did he make it on the plane?

                        Mary S.

                        Comment

                        • #13
                          Re: TV / computer 6:30pm tonight!!!

                          Mary, I bet he got a kick out of that!
                          Dx @ 47 with HOCM & HF:11/00
                          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                          Lead failure,replaced 12/06.
                          SF lead recall:07,extracted leads and new device 2012
                          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                          Genetic mutation 4/09, mother(d), brother, son, gene+
                          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                          Comment

                          • #14
                            Re: TV / computer 6:30pm tonight!!!

                            Lisa

                            That was the day i had surgery are there going to be tapes available to buy, i would really be interested in seeing it, and how was your vacation

                            Shirley
                            Diagnosed 2003
                            Myectomy 2-23-2004
                            Husband: Ken
                            Son: John diagnosed 2004
                            Daughter: Janet (free of HCM)

                            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                            Comment

                            • #15
                              Re: TV / computer 6:30pm tonight!!!

                              Shirley, I do have the info just not on me at the moment. I'll have it by the morning though! New computer getting everything transfered.

                              Mary S.

                              Comment

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