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Logon tonight at 6:30pm EASTERN TIME to www.CN8.tv - Real Life with Mary Ameroso and see our 30 minute interview!
Stacey and Dr. M. Maron did a great job!! You have to see this!
Let us know what you all think!
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Thanks guys! It was nice to have the oppurtunity to get the word out! We are very grateful to Dr. Maron for making the quick trip to NJ for filming and to Joanne and Lisa S. for getting this organized.
YOu may have noticed the picture at the end, that was Keith. He passed away last May with undiagnosed HCM. God Bless Keith...and thank you Keith for the doors you opened to so many...others will be helped because of his life. Keith was a police officer, and he is still protecting us today!
Best to all,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Lisa, the show was great and you all looked and sounded wonderfull. My heart goes out to you both as the loss of Lori will always be evident but what a tribute to her as well. I know she is proud of you and Stacey for going foward with your loss to help so many . Keep up the great work and do not ever doubt what you do for the masses. Just for a minute look at this site alone and see how many people pop in for info. We asked Dr. Maron for his autograph. My oldest daughter was going to ask if he had any autographed pinups of himself but chickened out. One of my friends called and said no wonder you get palpitations! We had a good laugh . Dr. Maron wants my son Tim to send him a picture from his palm recording. He said he'll send it to Hollywood and see if they need a stunt double for Vin Diesel. Heck he looks better then Vin Diesel. He said gee I could do the clinic on Tuesdays and go to Hollywood in between ! He's so funny. Pam
Dx @ 47 with HOCM & HF:11/00
Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
Lead failure,replaced 12/06.
SF lead recall:07,extracted leads and new device 2012 [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
Genetic mutation 4/09, mother(d), brother, son, gene+
Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin
Should we have a vote for the cutest HCM Doc. I think M. Maron wins it hands down! Sarah and I have had this discussion before! And what is even better is his heart (no pun intended) is always in the right place when it comes to making decisions. He is an outstanding physician!
And when I see him on Thursday I will let him know that!
Mary , you have my vote . And he has a real big heart also. My daughters fight to go with me just so they can drool over themselves when he speaks to them . O.K. so I drool a little myself. Pam
Dx @ 47 with HOCM & HF:11/00
Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
Lead failure,replaced 12/06.
SF lead recall:07,extracted leads and new device 2012 [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
Genetic mutation 4/09, mother(d), brother, son, gene+
Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin
Yeah Reenie , I know he reads the board but he is always in good humor and knows how we all feel about him . He can read ya like a book and not even turn the pages! I think he'll get a kick out of it. He's like family by now that's how comfortable he makes ya feel. I'm glad you had a good laugh. Take Care, Pam
Dx @ 47 with HOCM & HF:11/00
Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
Lead failure,replaced 12/06.
SF lead recall:07,extracted leads and new device 2012 [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
Genetic mutation 4/09, mother(d), brother, son, gene+
Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin
Oh absoluty, that is precisely why I like him. If anyone can put up with me for a year like he has well he deserves a medal. With this past year I think I have given quite a few doctors nervous breakdowns. Can't imagine what he is going through not being able to actually see all of the test and symptoms. But he sticks to it and as Pam said he is very easy to talk to.
OHHH I got it maybe we should start a Dr. M. Maron fan club
If ya read this Dr. Maron it wasn't me I promsie. Ok yeah it was but you are one of the best doctors I have ever met (quite a few).
OK Ladies... You are aware I will be seeing MM in a week at ACC and I am growing concerned that his ego may get a little over inflated ... well he just may not fit on the plane if you guys keep it up!
I have work for him... if you keep it up I mean it ...he will not fit on the plane!
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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