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Lisa Salberg Find out more about Lisa Salberg
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  • good news on Felix

    I called NEMC to see how Felix was doing - I do not have details but I know he is done and doing well!

    When I know more I will post it!

    Best to all,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: good news on Felix

    I'm glad to hear it! Have you heard from Ralph or Robbyn?

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Re: good news on Felix

      That's great news! I am hoping to meet him next week as he is scheduled to leave Tufts the same day Caitlyn goes in. We spoke on the phone last week and he promised to provide a journal type report on his experiences.

      Paul

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      • #4
        Re: good news on Felix

        Paul -
        How are you all doing?? Give me a call if you have a chance.

        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment

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