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Lisa Salberg
Lisa Salberg
Lisa Salberg
HCMA CEO and Founder
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  • #1

    updates to the website

    Greetings to all,

    Over the next few months you will see some changes to the website. Many of these changes will happen slowly and I will post changes here under this message to let you know when the changes have been made.

    Today we added some information under "complications" http://www.4hcm.org/complications/index.php on "end stage" or Burnt out" HCM. There will be more data posted about this 'complication in the next few days.

    Stay turned for more information!

    Be well,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
  • #2
    Re: updates to the website

    Hi all,
    Information on the upcoming golf outing is online in the fundraising area - more information to come on sponsoring options!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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