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  • Fibrosis

    Hi All....
    I was wondering if anyone had any thoughts on this. Fibroids run in the females of my family. My mother had a complete Hysterectomy due to Fibroid tumors, (she also died suddenly at 59 with what we now suspect was HCM), my oldest sister eventually had to have a Hysterectomy, due to fibroids in her uterus, and my other sister had a Hysterectomy due to large fibroids in her overies. I never developed them in my uterus or overies, but I did develope fibrosis in my left breast and had to have a large tumor removed 5 years ago. Is there a link with these types of fibrosis and the fibrosis that occurs in our hearts with HCM?

    The BEST is yet to come !!

  • #2
    Re: Fibrosis

    I am not aware of any links at this time - if I hear anything I will report it to you all.

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)