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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • #1

    hospital

    Well i go into the hospital tomorrow wish me luck that they have me feeling better soon, I will let you guys know what happens when i return home Wednesday, hopefully i will know something, I'm more concerned over the blood gases they will be doing had it done once and didn't like it at all, thinking back i have had trouble breathing with chest pain and blacking out since i was 20 years old, just hope they can give me some relief as to what is going on with me, everyone please take care of yourself and i will chat with you soon


    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9
    Tags: None
  • #2
    Re: hospital

    Good luck, Shirley. I'll be thinking of you.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment

    • #3
      Re: hospital

      Shirley, big hugs to you....I'm sure you will be feeling much better!
      \"It is not length of life, but depth of life.\"

      Ralph Waldo Emerson

      Comment

      • #4
        Re: hospital

        Shirley,

        Hope they get these issues straightened out for you and that you're feeling much better before too long. I'll be thinking of you today

        Jim
        "Some days you're the dog... some days you're the hydrant."

        Comment

        • #5
          Re: hospital

          Good luck and God Bless. Keep us posted ASAP
          Midge

          Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
          ICD&Pacemaker 1996
          Heart transplant March 19, 2004 @ Mayo Rochester
          Mom of Kaye.

          Comment

          • #6
            Re: hospital

            Good Luck Shirley.
            Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
            So if you are capable of thought then you are capable of great things
            Good luck and stay well.
            Glen

            Comment

            • #7
              Re: hospital

              I hope all went well. How are you ???

              lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment

              • #8
                Re: hospital

                Lisa between the 3 doctors and they have decidedon the myectomy, i'm have moderate to severe regurgitation docGilligan say the mitral vavle is hitting the arort valve, septal mearsement was 1.6cm now it s 1.9cm, i'm jusy ready for something to happen which it will on the 23 of this month Everyone take take and will type to you soon

                Shirley
                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                Comment

                • #9
                  Re: hospital

                  Shirley,
                  Get patched up and be as good as new – maybe even better. Thinking of you and sending good wishes through the cosmos. Friends like you are needed by all.
                  Burt

                  Comment

                  • #10
                    Re: hospital

                    Who is going to do the myectomy?
                    As you know I do recommend a specialty center for myectomy - do you want some information on contacts?


                    Lisa
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment

                    • #11
                      Re: hospital

                      lisa

                      A Dr. Zocco is doing the surgery, Dr. gilligan i wouldn't think point me the wrong direction, but if you have any other doctor that my insurance co will pay for bringem my way

                      Shirley
                      Diagnosed 2003
                      Myectomy 2-23-2004
                      Husband: Ken
                      Son: John diagnosed 2004
                      Daughter: Janet (free of HCM)

                      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                      Comment

                      • #12
                        Re: hospital

                        Other centers will require travel. I am unsure what your coverage will allow. Mayo, Cleveland and Boston have the most active programs with great results.

                        Lisa
                        Knowledge is power ... Stay informed!
                        YOU can make a difference - all you have to do is try!

                        Dx age 12 current age 46 and counting!
                        lost: 5 family members to HCM (SCD, Stroke, CHF)
                        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                        Therapy - ICD (implanted 97, 01, 04 and 11, medication
                        Currently not obstructed
                        Complications - unnecessary pacemaker and stroke (unrelated to each other)

                        Comment

                        • #13
                          Re: hospital

                          as long as my insance co has a list of a dr i virginia that will do it and has experience doing them i'm out of luck going to another state sorry and my insurance co, said Dr Zocco Thanks for trying not much time left now to fight it since the surgery is the 23 rd keep me in your prayers


                          Shirley
                          Diagnosed 2003
                          Myectomy 2-23-2004
                          Husband: Ken
                          Son: John diagnosed 2004
                          Daughter: Janet (free of HCM)

                          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                          Comment

                          • #14
                            Re: hospital

                            You are in my thoughts I wish you all the best!!

                            Lisa
                            Knowledge is power ... Stay informed!
                            YOU can make a difference - all you have to do is try!

                            Dx age 12 current age 46 and counting!
                            lost: 5 family members to HCM (SCD, Stroke, CHF)
                            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                            Therapy - ICD (implanted 97, 01, 04 and 11, medication
                            Currently not obstructed
                            Complications - unnecessary pacemaker and stroke (unrelated to each other)

                            Comment

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