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My Kid Brother

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mtlieb Find out more about mtlieb
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  • My Kid Brother

    Hi All,

    Gosh i'm feeling chatty today...

    My father died from HCM (lethal arrhythmia) when he was 56 years old, although at the time he had not been diagnosed with it. Since then, i have been diagnosed with HCM as well. Out of umpteen children and grandchildren (is umpteen even a word?), my little brother and i are the only members of my immediate family to be tested.

    Last year, my brother had an echocardiogram done which did not show HCM definitively, but on the other hand it did not show that he didn't have it either. The echo was performed by a technician, and read by his PCP, who is a physician's assistant. Greg was told at the time that he had mitral valve prolapse with regurgitation, just like me, and he has also been experiencing a lot of symptoms... shortness of breath, chest pain, arrhythmias, tachycardia, etc. He is now going for a follow-up echocardiogram, and i want to provide him with some information going into the procedure, so at least he can inform them as to what they are looking for specifically. Let me know if you think i should add anything to the list...

    Inform the technician BEFORE your echocardiogram is started, that you have a family history of Hypertrophic Cardiomyopathy (HCM) and that they should specifically be looking for evidence of this.

    What are my septal measurements?

    Do i have any obstruction through the mitral valve?

    If there is obstruction, what is my gradient (in mmHg)?

    What is my LVOT velocity (in meters/sec)?

    May i have the results of my echocardiogram discussed with a cardiologist who is familiar with HCM, and if so, may i arrange a meeting with him or her?

    I also mentioned that he should inform the person performing the test, that he has been experiencing the symptoms he mentioned, and that they are of concern to him.

    Thanks so much for your input.

    Thanks,

    Jim
    "Some days you're the dog... some days you're the hydrant."

  • #2
    Re: My Kid Brother

    Makes lots of sense. I hope he is able to take it as that. Sue

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