I was wondering if we could take a poll here...how many of us have both conditions? If you do, what do you take for your thyroid and how do you control your condition?
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How many HCM'ers are also hypothyroid???
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Re: How many HCM'ers are also hypothyroid???
I have had a hypoactive thyroid for 10 years. Currently, I'm taking levothyroxine. I was diagnosed with HCm 4 years ago..consequently I have been implanted with both a dual chamber pacemaker and a defibrillator.
tricia
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Re: How many HCM'ers are also hypothyroid???
Do you all know what your TSH is and at what TSH you feel best? Mine is right now around 4.7 which is too high, so I just increased my Synthroid and hope to get my TSH into the high 2 low 3 range.Daughter of Father with HCM
Diagnosed with HCM 1999.
Full term pregnancy - Son born 11/01
ICD implanted 2/03; generator replaced 2/2005 and 2/2012
Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.
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Re: How many HCM'ers are also hypothyroid???
I was diagnosed around 28 yrs. ago --- had hyperthyroid. Had 3/4 of the gland removed 26 yrs. ago. Have been taking Levothroid every day since then
P.S. My father had hyperthyroid and he had HCM\"It is not length of life, but depth of life.\"
Ralph Waldo Emerson
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Re: How many HCM'ers are also hypothyroid???
Is hypothyroid part of the general profile of HCM? I have never been treated for hypothyroid, but every few years I show up hypo on a thyroid level screen, but whenever we have followed it up, it has not warranted treatment. This suggests to me that my thyroid functions at the low end of the normal range. I wonder if this common with HCM?
Marv
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Re: How many HCM'ers are also hypothyroid???
Hi Marv. Noone knows if hypothyroid is part of HCM. This thread was started to see if any patients have both. They're just wondering if there is a connection or not. Sometimes the slightest seemingly unrelated things are actually closely related when you start looking. At this point, though, there is no documented correlation between HCM and hypothyroidism.
ReenieReenie
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Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
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Re: How many HCM'ers are also hypothyroid???
Reenie is correct... by the way, hi Reenie!
But there sure does seem to be a lot of HCM'ers out there who also suffer from hypothyroidism. Just about everyone in my immediate family has been diagnosed with hypothyroidism and are taking medication for it. My doctor was actually a bit surprised when he tested me for hypothyroidism and i didn't have it, given my family history. But it is something i will keep an eye on
Take care all,
Jim"Some days you're the dog... some days you're the hydrant."
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Re: How many HCM'ers are also hypothyroid???
I have enough diagnoses myself so I leave the Hypothyroidism to my wife. She contracted it as a result of long term use of Tegritol which is one of the drugs she takes for her epilepsy. She takes 0.1 mg / day of Levoxyl, or Levothroid, or Synthroid (all the same stuff, just different brand names.)
I guess we are what we eat.
Burt
PS All boys have toys. It’s just that the older you get, the more expensive the toys.
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Re: How many HCM'ers are also hypothyroid???
Hi all,
There seems to be some postings for both hyper- and hypo-thyroidism. There’s plenty of information on both at the following site. (Last two entries in the ‘H’ category.)
http://www.rxmed.com/b.main/b1.illness/b1.illness.html
Burt
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