Tweet
[discussion group?]
Author: Debbie (---.proxy.aol.com)
Date: 05-06-02 18:07
I was just wondering if anyone knew of a site that had a chat room where we could talk with other people who have this disease. My husband is the only person we know with this, so it is very hard for people to understand sometimes. It often helps if you have someone to talk to who really understands. Thanks for any help.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: discussion group?]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-06-02 18:51
Dear Debbie,
We haven't set up a chat room here ---yet, but if we get enough interest, it may be a possibility. However, if you join the HCMA, you can choose to be put into the network and meet people in your area or age group or whatever variable you choose to be able to phone, e-mail or even meet!
You can call the HCMA at 973-983-7429 to be sent the networking form.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: discussion group?]
Author: Amy (---.bna.bellsouth.net)
Date: 05-07-02 01:03
Hi Debbie,
Try CommunityZero.com you can set up a web page and chats on just about anything.
Good luck!
Amy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: discussion group?]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-07-02 01:05
Pam Burke runs a group on Communityzero.com for Coronary Artery Disease, Angina and Heart Attacks. I know her from iVillage. I don't know of any HCM groups over there, but it is possible.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Sarah and Debbie]
Author: Amy (---.bna.bellsouth.net)
Date: 05-07-02 01:32
Hi,
I am a member of a heart disease group that meets on communityzero called "Our Heart Place" if you are interested it is a really great group. We also meet on WebMD.com in the heart disease chat room there are several cardiomyopathy people, we meet on Monday and Friday, it is free for anyone else to use on another night if you want to just use a chat room, it might be the easiest solution for the time being.
Amy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: Debbie (---.glen-net.ca)
Date: 05-07-02 11:49
thanks for the info. I will try these out.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: Wayne (---.centrelink.gov.au)
Date: 05-07-02 23:10
Hi Sarah
I am a web developer, I am willing to help with developing a chat room here if you decide you want one.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-08-02 01:55
Dear Wayne,
Thank you very much for the offer; I'll pass it along, but I do think that Lisa has web people in NJ (I'm in Chicago). I haven't had a chance to discuss a chat room with her yet since she went out of town for the week. I'll keep you posted.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: Lisa (---.proxy.aol.com)
Date: 05-09-02 00:15
Wayne,
Call me at the HCMA office next week and we can talk about this further. I would appreciate the help.
Lisa Salberg
President
HCMA
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-09-02 08:53
See what I know? ; )
Cool beans
Sarah
Author: Debbie (---.proxy.aol.com)
Date: 05-06-02 18:07
I was just wondering if anyone knew of a site that had a chat room where we could talk with other people who have this disease. My husband is the only person we know with this, so it is very hard for people to understand sometimes. It often helps if you have someone to talk to who really understands. Thanks for any help.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: discussion group?]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-06-02 18:51
Dear Debbie,
We haven't set up a chat room here ---yet, but if we get enough interest, it may be a possibility. However, if you join the HCMA, you can choose to be put into the network and meet people in your area or age group or whatever variable you choose to be able to phone, e-mail or even meet!
You can call the HCMA at 973-983-7429 to be sent the networking form.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: discussion group?]
Author: Amy (---.bna.bellsouth.net)
Date: 05-07-02 01:03
Hi Debbie,
Try CommunityZero.com you can set up a web page and chats on just about anything.
Good luck!
Amy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: discussion group?]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-07-02 01:05
Pam Burke runs a group on Communityzero.com for Coronary Artery Disease, Angina and Heart Attacks. I know her from iVillage. I don't know of any HCM groups over there, but it is possible.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Sarah and Debbie]
Author: Amy (---.bna.bellsouth.net)
Date: 05-07-02 01:32
Hi,
I am a member of a heart disease group that meets on communityzero called "Our Heart Place" if you are interested it is a really great group. We also meet on WebMD.com in the heart disease chat room there are several cardiomyopathy people, we meet on Monday and Friday, it is free for anyone else to use on another night if you want to just use a chat room, it might be the easiest solution for the time being.
Amy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: Debbie (---.glen-net.ca)
Date: 05-07-02 11:49
thanks for the info. I will try these out.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: Wayne (---.centrelink.gov.au)
Date: 05-07-02 23:10
Hi Sarah
I am a web developer, I am willing to help with developing a chat room here if you decide you want one.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-08-02 01:55
Dear Wayne,
Thank you very much for the offer; I'll pass it along, but I do think that Lisa has web people in NJ (I'm in Chicago). I haven't had a chance to discuss a chat room with her yet since she went out of town for the week. I'll keep you posted.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: Lisa (---.proxy.aol.com)
Date: 05-09-02 00:15
Wayne,
Call me at the HCMA office next week and we can talk about this further. I would appreciate the help.
Lisa Salberg
President
HCMA
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Sarah and Debbie]
Author: s. beckley -moderator (---.dsl.mindspring.com)
Date: 05-09-02 08:53
See what I know? ; )
Cool beans
Sarah