If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Back from Cleveland

Collapse

About the Author

Collapse

swinand Find out more about swinand
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • mtlieb
    replied
    Re: Back from Cleveland

    Steve,

    Glad to hear your trip went well... it was a heck of a week to go skating across the northeast to your appointment. I'm looking forward to seeing this crazy weather end!

    Jim

    Leave a comment:


  • shirleymahoney
    replied
    Re: Back from Cleveland

    Steve

    I am glad everything went for you , I like my ICD it's my security blanket as i had alot of VT in the last few months i feel it may have saved my life, i'm glad you made it through all that weather and safely at home, Take Care

    Shirley

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Back from Cleveland

    Steve,
    Thanks for the update. You have shown yet again how a visit to an HCM center can improve your care and quality of life.
    I am glad all went well.

    Lisa

    Leave a comment:


  • Reenie
    replied
    Re: Back from Cleveland

    I'm glad you had the implant and that all is well. Take care of yourself!

    Reenie

    Leave a comment:


  • swinand
    started a topic Back from Cleveland

    Back from Cleveland

    Saw Dr. Lever at Cleveland last week. After reviewing things with him and his nurse practitioner I set out on a day of testing. Xrays, EKG, Echo, Stess Echo, and interogation of my new ICD so the stress test didn't set it off. Interestingly they found that in the time I had it put in (one week) I had 2 episodes of nonsustatained v-tach. The ICD is set to monitor at 145 BPM, fire at 165 BPM, and again at 185 BPM. The v-tach got up to 160 BPM. I met with Dr. Lever after all the test result came back, he recommended no myectomy. My HCM is of the Apical variety with the lower half of my ventricular chamber obliterating (muscle banging into muscle with no lower chamber remaining)with each beat. He felt any surgery would be of minimal value at best since there is not obstruction per se. After seeing my echo tape and discussing in detail with Dr. Lever I am satisfied it is the correct course of action for me at this time, although I'm still not sure why I have a 59mm/Hg gradient. (Dr. Lever felt it was the way my previous tests were measuring it with the obliteration...does that make sense??) He was positive about the recent ICD implant and encouraged me to be active to the level I can tolerate. More walking, general exercise etc. no heavy lifting or strenuous activities, now that I have the safeguard of the ICD. He is changing my meds to a mix of verapamil (which I was already taking 600mg/day) and Toprol XL. He lowered the verapamil after raising his eyebrows at the daily dosage to 240mg/day and added the 50mg/day of Toprol. My wife felt the visit was well worth the journey. She learned more yet about HCM and gave her a sense of reassurance and comfort things are under control for now. Of course getting from Delaware to Cleveland was no small feat. For those of you not on the east coast it has been bitterly cold here, and LOTS of various forms of precipitation last week. We hit them all on the way. Sleet, freezing rain, snow etc. etc. Made for quite a journey.
    Steve.
Working...
X