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myectomy is coming


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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • myectomy is coming

    Well i went to the Doctor today i go in the hospital Febuary 9th for a bunch of test including a TEE test and stress test to see if they can do surgery, the TEE test is mainly to check out my mitral valve to see how bad it has gotten, they changed my pacer again and i don't like it i am very aware of my heart beat now, i don't know why they messed with it because he says pacing wasn't doing anything for me, and Dr. Gillagan wants to see how much med it is going to take to relax my heart and he feels better with me being in the hospital for that, a gland in my neck on the right side has enlarged and he pushed in on my stomach and i could feel it getting bigger, that was a weird feeling, he feels i'm not getting any better, he told me that i have moderate hypertophy with severe symptoms, after talking with me and me telling my limitations, he feels it's time to do something to relieve my symptoms. I will let you guys know more as i know it

    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

  • #2
    Re: myectomy is coming

    Lot’s of love and our prayers go with you. Hope you come out of this better then ever.


    • #3
      Re: myectomy is coming

      He is a good person with ample knowledge to assist you, this to me is key! I know you want to feel better RIGHT NOW... but stick with his suggestions and try the meds and look at your options. What is your gradient at this point?

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)