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Desperate Down Under

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  • Cynaburst
    replied
    Re: Desperate Down Under

    I am with Reenie here. I think you should see a neurologist. Your symptoms don't seem heart related to me. I had a brain tumor myself, and my HCM had nothing to do with it.

    Leave a comment:


  • Sarah
    replied
    Re: Desperate Down Under

    paul

    i feel like that sometimes. you may just be under a lot more stress than usual and stress can hit us HCMers a lot harder than others since we are working with a full engine, so to speak.

    i would try meditating to see if you can clear your head. makes a world of difference for me.

    good luck,

    s

    Leave a comment:


  • Reenie
    replied
    Re: Desperate Down Under

    Hi Paul. Sorry to hear that you are having so many problems. I don't have any answers for you. Hopefully someone here will post to help. Until then, you might want to ask the doctor for a CT scan or MRI *if you don't have an ICD* to see if they can pinpoint the trouble? Just a thought.

    Reenie

    Leave a comment:


  • progers
    started a topic Desperate Down Under

    Desperate Down Under

    Hi everyone,


    This is my first posting to the website even though I regularly read your messages. You are all so supportive of each other it is great!. My wife and I moved to Australia in 1999 from Seattle. We are both 34 and have a baby due mid year: he/she will be born an Aussie!

    Anyway, like many of you I am struggling with HOCM. Even though I have severe septal hypertrophy and a high resting gradient, I have remained relatively well since being diagnosed in 1996 when I was 26: I get the odd pressure gradient sensation (tightness in the chest), but my symptoms are manageable and I still go surfing and occassionally work in Indonesia.

    For the past month or so, I have been feeling extremely ill, but not because of the usual symptoms (ie. chest pain, pressure gradient etc.): Rather, I have a chronic headache and extreme tightness in the head. I also feel confused, dizzy and weak - even when at rest. In short, it seems as though my blood pressure is unstable, but everytime I get it checked, it is within normal range. My cardiologist here (who also does ablations) cannot tell me what is going on - we've tried lowering my atenolol and starting me on diltiazem, but I am still out of it. I am also in touch with one of Australia's top HOCM specialists in Sydney, but still no answer. I wish I was back in the States to get expert one on one help.

    Have any of you experienced these kinds of symptoms? They are making my life enbearable.

    Many thanks,

    Paul

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