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Is it HCM?


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  • Is it HCM?

    [Is it HCM?]

    Author: Dearinger (---.cox-internet.com)

    Date: 05-04-02 15:06


    My 43 year old husband has been told that he has a "cardiomyopathy". He has also been told that he has Left Ventricular Hypertrophy based on an echocardiogram.

    He is seeing a cardiologist, internist, and now an electrophysiologist. He is constantly dizzy, lightheaded and weak. He has mild mitral regurgitation and moderate to severe hypertrophy of the septum and walls of the left ventrical. He has been a heavy weight lifter for 25 years and we have also been told it may be athletic heart syndrome.

    We live in Paris, Texas and traveled to Dallas ( an hour and a half away ) to see a new intern who then referred us on to the cardiac electrophysiologist. He will wear an event monitor for 30 days and have a "study" done to see if he has any arrythmia.

    How do we know if what he has is simply LVH or if is actually HCM? Are there specific tests to determine if what he has is the familial cardiomyopathy that I would need to then have my children screened? Also, any names of reputable doctors in the Dallas area that treat HCM would be greatly appreciated.

    I look forward to any comments and suggestions.

    Thank you,

    Susan Dearinger


    [Re: Is it HCM?]

    Author: A.I. (---.public.svc.webtv.net)

    Date: 05-05-02 00:20

    Hello Susan,

    Left Ventricular Hypertrophy



    Hypertrophic Cardiomyopathy


    Hope this helps.


    [Re: Is it HCM?]

    Author: s. beckley -moderator (---.dsl.mindspring.com)

    Date: 05-05-02 11:05

    Dear Susan,

    There are genetic tests that can be run to determine HCM or not. You may want your husband to see an HCM specialist anyway, since the treatment for him will be very similar if not identical, regardless of the origin.

    Please know that newer studies have found that electrophysiology studies are NOT all they were cracked up to be. I've had one myself, but they carry of small risk of dying on the table and they can give you a false negative for determining the risk of sudden death. SO, please call the HCMA office to get the name of an HCM specialist who can answer your questions and give you the best treatment. (973-983-7429)

    NOTE: This is a post from the previous forum message board.

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