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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
heck yes... that is just what they are looking for.
I saw the feature this morning and asked Kelly to post the link. The entire feature is about how important it is to get opinions from specialist and if your current doctor has a problem with the second opinion...well in short, find a new doctor!
Best wishes,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
LOL, I'm not forgetting to add the part about travelling to Ohio for the ICD too. I just have to laugh when I'm writing this. Man, this gets awful convoluted. LOL
Reenie
Reenie
****************
Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
Reenie
Did you have to do anything special to get it to go through, i have written mine 3 times and it errors out on me it's getting very frustrating, any thoughts
Shirley
Diagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
Reenie i got to go through finally at least they sent me a reply to say they got it anyway so we'll see what happens, it would be nice if they did a piece on HCM, i think that would help alot to get the word out about the disease. Take Care
Shirley
Diagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
Wow i never thought about that i don't know where my head is lately, i think these CCB are doing something to me mental wise anyway, I wasn't like this before i started on all this med, i better go my 3 yr old grandaughter is trying on all my clothes LOL:
Shirley
Diagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
I just saw this!
I went ahead and sent them my story of travels to boston from Washinton state.
i went to the attched site and it came up with the right heading.
it returned me a confirmation.
I'll have to start watching the show !!
Hello to everyone
I'm new to this site, and I came across this topic regarding "The Today Show"...well....did they air anything about HCM? No one posted anything after January. Im curious to know if they used anyone's story?
Thanks for the update
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Tweet
LOL
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