After I had my echo the cardiologist just told me that I had hypertrophic obstructive cardiomyopathy. He did write that down on a piece of paper for me, but he didn't give me any other information except to say that since I wasn't showing symptoms yet that I should continue doing what I was doing far as activity was concerned. After reading some of the messages on this website I find that many people were given reports after they had their echo including the thickness of the septal wall. Is it the usual thing that the patient receives a written out report.?
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Written report after receiving an echo
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Re: Written report after receiving an echo
You may request a copy of your echo report from your doctor. Were you advised to have your families screened? What medications were you put on? What were your symptoms that lead to the echo?
LisaKnowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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Re: Written report after receiving an echo
Bettie,
Of all the heart tests I have had done, none of the doctors gave me a written report and one of my heart doctors never calls, I always have to call them to find out the results. I have found out that most tests you have, doctors will only give you a brief summary and still you don't know anything. I always get copies myself of every test and hospital admissions.Pat
Virginia
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Re: Written report after receiving an echo
Thank you for your replies. Lisa, I had the echo because when I had an ekg before some minor surgery the doctor said that it showed that I had HCM. After the echo I wasn't put on any medicines because my blood pressure is usually a little on the low side and the cardiologist was afraid that if he gave me inderol that my blood pressure would go too low. He did tell me that if I had close relatives with heart murmurs that they should be informed about my condition.septal myectomy on Jan. 27, 2005
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Re: Written report after receiving an echo
Bettie, not everyonen with HCM has a murmur. All of your close blood relatives should be tested. Your children would have a 50/50 chance of getting HCM because it's a dominant genetic trait. More than likely one of your parents have/had HCM. And any of your siblings also have a 50/50 chance of having HCM. That's why they should all be tested.
ReenieReenie
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Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
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