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cev Find out more about cev
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  • surgery

    I don'tvisit this site often but I wanted to take a minute to tell anyone who is contemplating the surgery route that I'm a 59 yr old male that has the disease. I had surgery in April of 2003 at the Mayo Clinic in Rochester. Everything went fine and I noticed incredible improvement immediately.I cannot say enough good about the people at Mayo. Other than being about 50# overweight I feel great and no longer suffer from shortness of breath. Need to unload the extra # and I'll feel even better. I didn't think to ask the people at Mayo how this will affect my lifespan now.

  • #2
    Re: surgery

    dear cev

    AWESOME!!!! i went to mayo, too (no surgery) and they blew my mind!

    they can't tell you how many extra years you just bought, but i'm sure it is a lot and losing the weight will make an even bigger difference.

    take care and keep us posted on your progress

    sarah

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    • #3
      Re: surgery

      Welcome CEV!

      I agree, the Mayo is a great place! Most myectomy stories are similar to yours. I wish you all the best!

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: surgery

        Cev, Great news! Tell us more about your treatment, I am guessing that you had a Myectomy? How long did you stay at the Mayo? Who was your Dr. and how was his treatment? How are you feeling today? What are your best recommendations for getting started, where did your family stay? Where do you live? So many questions and only two fingers to type... Thank you Rick
        \"A Misty Morning Does Not Signify A Cloudy Day\'

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