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cynthiaG Find out more about cynthiaG
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  • #1

    dr. visit today

    saw my local cardiologist....very good, very nice and informative. He has patients with HCM. I asked him how old his oldest patients were and he told me 91 and 86. The 91 yr. old died recently but with other complications. I asked him if I was having any CHF episodes (a little fluid sometimes on inner right foot. ) He looked at it and said it was due to the bad vericose vein I have and that I wouldn't have CHF as my heart is very strong . His nurse had a long talk with me about losing weight and getting regular exercise. I promised I would do that.
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson
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  • #2
    Re: dr. visit today

    I'm confused. What did he mean when he said that you wouldn't have CHF because your heart is strong? Does he mean that you don't have CHF right now or that you can't get CHF? There is a difference, ya know.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Re: dr. visit today

      I second Reenies post...huh???
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: dr. visit today

        Ditto on the CHF issue... don't we ALL have strong hearts because of our HCM? I would probe further into that one.
        "Some days you're the dog... some days you're the hydrant."

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        • #5
          Re: dr. visit today

          Cynthia

          I also have HOCM with CHF, so you can have CHF when you have HCM

          Take Care
          Shirley
          Diagnosed 2003
          Myectomy 2-23-2004
          Husband: Ken
          Son: John diagnosed 2004
          Daughter: Janet (free of HCM)

          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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          • #6
            Re: dr. visit today

            To clarify, what he was stating was that my heart was strong and functioning very well (lungs clear, chest sounds good, etc.no signs of fluid retention in legs, body). No doctor can predict what your future will be. He wasn't saying that I will never get CHF. He was basically saying that I've done well with this so far. He is a cardiologist that treats several HCM patients and is very well informed.
            \"It is not length of life, but depth of life.\"

            Ralph Waldo Emerson

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            • #7
              Re: dr. visit today

              Thanks for clearing that up, Cynthia. I just didn't understand what you meant. I'm glad that you had a good checkup.

              Reenie
              Reenie

              ****************
              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.

              Comment

              • #8
                Re: dr. visit today

                CFH Is tricky and can pop up with little warnings. A good way to monitor this is jumping on the scale each morning - if you are up more than 2-3 pounds you need to take action.
                (this also helps you maintain your weight)

                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment

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