Hi. I don't write much on this board but I read it all the time. There is some VERY helpful information here! Thanks!
Here's my situation: I had the Alcohol Ablation done back in April of 2001. It went very well and my gradient was reduced from 100 to 36. I have felt great and have been off all meds since then. I naively thought the whole "HCM problem" was over. (Well, DUH, it never really goes away!) About 6 months ago I started getting A-fib. It happened about 4 times over about a month-long period. At the time I was taking some fertility medication and assumed that was what triggered it. I stopped taking the medication and didn't have another episode of A-fib until a few months later (this past September.) Since then I have had a few more. I finally was able to make it to my Dr.s office (on Dec. 17th) while it was happening so that she could make an actual diagnosis. She started me on Toprol and Fleckenide (sp.) as well as a 3-month-long regimin of Cumadin. To say the least, the whole thing is very disappointing. I joined Curves back in August and have lost 20 pounds with diet and exercise. NOW when I go to exercise I have a hard time keeping up because the Toprol and/or Fleckenide make me tired and slow my heart rate. I feel like I can't win for losing!
I am curious to know why I never had a-fib BEFORE the ablation. Is this something that is a side-effect of a septal ablation (done by alcohol, or otherwise?) Or were the medications I was on masking it? My brother's history is almost identical to mine and he ended up having the MAZE procedure (open-heart) a few years ago because of continuous a-fib. So maybe that is in my future. I hope not, but at least I know they are starting to do the MAZE as a non-open heart procedure now. That makes me feel a little better!!
I DO fell lucky that I was the last kid in my family. My father died back in 1976 from HCM (then called IHSS) after having two strokes, and my sister also died in 1998 from HCM after having a stroke. I wish they could have benefitted from the new procedures and knowledge out there now!
Thanks for listening!
Shannon
Here's my situation: I had the Alcohol Ablation done back in April of 2001. It went very well and my gradient was reduced from 100 to 36. I have felt great and have been off all meds since then. I naively thought the whole "HCM problem" was over. (Well, DUH, it never really goes away!) About 6 months ago I started getting A-fib. It happened about 4 times over about a month-long period. At the time I was taking some fertility medication and assumed that was what triggered it. I stopped taking the medication and didn't have another episode of A-fib until a few months later (this past September.) Since then I have had a few more. I finally was able to make it to my Dr.s office (on Dec. 17th) while it was happening so that she could make an actual diagnosis. She started me on Toprol and Fleckenide (sp.) as well as a 3-month-long regimin of Cumadin. To say the least, the whole thing is very disappointing. I joined Curves back in August and have lost 20 pounds with diet and exercise. NOW when I go to exercise I have a hard time keeping up because the Toprol and/or Fleckenide make me tired and slow my heart rate. I feel like I can't win for losing!
I am curious to know why I never had a-fib BEFORE the ablation. Is this something that is a side-effect of a septal ablation (done by alcohol, or otherwise?) Or were the medications I was on masking it? My brother's history is almost identical to mine and he ended up having the MAZE procedure (open-heart) a few years ago because of continuous a-fib. So maybe that is in my future. I hope not, but at least I know they are starting to do the MAZE as a non-open heart procedure now. That makes me feel a little better!!
I DO fell lucky that I was the last kid in my family. My father died back in 1976 from HCM (then called IHSS) after having two strokes, and my sister also died in 1998 from HCM after having a stroke. I wish they could have benefitted from the new procedures and knowledge out there now!
Thanks for listening!
Shannon
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