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2003 a look back


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Lisa Salberg Find out more about Lisa Salberg
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  • 2003 a look back

    It is that time again, the year is over and we can look back to see what has changed. A year ago this time we were getting ready to launch this new version of our message board, this one! Since then we have added 601 users. This board has become a part of many lives. Day in and day out we may be alone in our communities at "home" but we know that HERE our HCM family understands! Thank you to all the friends new and old who have helped make this community a welcoming one and a caring one.

    This year the HCMA has helped approximately 45 people find their way to myectomies, 18 to Alcohol Septal Ablations, hundereds to better medical management of their HCM and 35 to ICD implants. We received the news of 9 appropriate ICD discharges over the year. THAT IS 7 lives SAVED, and 2 of them were saved more then once!

    Our annual meeting was wonderful and next year is shaping up to be better yet! We welcomed Kelly DeRose to our office and she has come to know many of you and has been an amazing source of help for me! (OH TODAY IS KELLYS BIRTHDAY! )

    Thank you to all of our wonderful friends in the medical community. These gifted men and women give of themselves EVERYDAY to help those of US with HCM live the best quality of life we can. Please know how much we appreciate all the work you do for us!!

    While so many good things happened, some bad things happened too. We lost to many people to HCM, some members of the HCMA, some never diagnosed, regardless of who there were simply too many needless deaths. To all those families who suffered a loss this year, you are in our thoughts and prayers.

    We thank so many of your for your donations throughout the year. Every dime helps us help you! Todays mail brought a wonderful gift, a donation of $3,000.00!!!! We thank the Katz family for again thinking ot the HCMA!

    What can we expect from 2004 - More myectomies, more ICD's, more med changes, more ablations and MORE ICD discharges saving lives! We can expect more friends to join us here on the board. We can expect more debates, more advice, more suggestions, more doctor visits, more advances in our understanding of HCM...and just maybe we can expect those pigs to fly!

    From my family to yours have a happy holiday season and may your New Year be healthy and happy!

    Peace to all,

    Lisa Salberg
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)