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  • Anyone in Ontario?

    [Anyone in Ontario?]

    Author: Debbie (---.glen-net.ca)

    Date: 05-01-02 08:45

    My husband was recently diagnosed with hocm. I was wondering if anyone else is going to the ottawa heart institute in Ontario, Canada? We are very new to the disease and are trying to find out as much as possible. My husband is scheduled for an angiogram on June 25, is that a normal waiting period? He is on 50 mg of adenelol but it is not relieving his symptoms, just making him more tired! We appreiciate any info. anyone might have. Thanks!

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    [Re: Anyone in Ontario?]

    Author: beckley (---.dsl.mindspring.com)

    Date: 05-01-02 11:48

    Dear Debbie

    Welcome to the board.

    It is my understanding that in Canada, you do end up on a waiting list for certain procedures. I can't tell you what a "normal" waiting period is there, but you can certainly ask your doctor, as he/she would should know what his patient's experiences have been.

    That dose of atenolol is not a huge dose, so please have him talk to his doctor about switching to another beta-blocker that may help with the symptoms and the fatigue. Also, many people find dosing 2x a day better for themselves with a beta-blocker --something to talk to doctor about as well.

    Many people live their full life expectancy with HCM.

    I would ask why they are doing an angiogram? What purpose does it serve? Has your husband had a heart attack?

    Talk to you soon,

    Sarah

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    [Re: Anyone in Ontario?]

    Author: Glen (---.com)

    Date: 05-01-02 13:38

    Hi Debbie, I live in Whitby Ontario near Oshawa, I don't know about Ottawa and any HCM specialists, but I have been seeing a Dr. Wigle at the Toronto General Hospital for 30 years now and he is in his own words one of the old men regarding HCM.

    I know you have to have a reference from your own doctor to see him.

    I believe the HCMA has him on his list of HCM specialists.

    On my last visit to him a few weeks ago, I did tell him about this site and he told me Lisa who is the president for HCMA approached and talked to him, so I am sure they maybe familiar with him.

    I know it would be awkward to get an appointment with him and come to Toronto, but if you can't find an HCM specialist in Ottawa it is another option to think about.

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    [Re: Anyone in Ontario?]

    Author: Glen (---.com)

    Date: 05-01-02 13:43

    Hi Debbie, I live in Whitby Ontario near Oshawa, I don't know about Ottawa and any HCM specialists, but I have been seeing a Dr. Wigle at the Toronto General Hospital for 30 years now and he is in his own words one of the old men regarding HCM.

    I know you have to have a reference from your own doctor to see him.

    I believe the HCMA has him on their list of HCM specialists.

    On my last visit to him a few weeks ago, I did tell him about this site and he told me Lisa who is the president for HCMA approached and talked to him, so I am sure they maybe familiar with him.

    I know it would be awkward to get an appointment with him and come to Toronto, but if you can't find an HCM specialist in Ottawa it is another option to think about.

    I think that it is important to get the severity of his HOCM diagnosed coorectly, so you need to see an HCM specialist. Some of the other cardiologist know didley about HCM.

    I am taking 50 mg of Atenolol right now, but I do not have obstruction so that seems a little low.

    Anyway, I wish your hubby good luck.

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    [Re: Anyone in Ontario?]

    Author: Debbie (---.glen-net.ca)

    Date: 05-01-02 14:50

    Thanks for writing back. He is having an angiogram because of his chest pain I believe. He is also having a holter monitor tomorrow for 48 hrs. Today his dr. prescribed nito. spray to see if that will alleviate some of his chest pain. We are taking this all one day at a time and learning as we go. Our dr. said he is considered moderate right now, but we really don't know what that means. Thanks for the info about Toronto, that is about 4 hrs. away. We are happy with the heart inst. they have a very good reputation we just don't know if out Dr. is a specialist in this area. Thanks again.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anyone in Ontario?]

    Author: Debbie (---.glen-net.ca)

    Date: 05-01-02 14:50

    Thanks for writing back. He is having an angiogram because of his chest pain I believe. He is also having a holter monitor tomorrow for 48 hrs. Today his dr. prescribed nito. spray to see if that will alleviate some of his chest pain. We are taking this all one day at a time and learning as we go. Our dr. said he is considered moderate right now, but we really don't know what that means. Thanks for the info about Toronto, that is about 4 hrs. away. We are happy with the heart inst. they have a very good reputation we just don't know if out Dr. is a specialist in this area. Thanks again.
    NOTE: This is a post from the previous forum message board.

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