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6 hours in ER for no event

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Deedee "family heart murmur" detected in early childhood, HCM diagnosed in 2000, ICD 2010 Find out more about Deedee
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  • 6 hours in ER for no event

    Apparently a couple weeks of escalating chest pain and swollen feet and fluttery flutters with an irregular heart beat is all just happening to announce it's formal take over of my life. No sign of an event what so ever.

    But my heart still HURTS as I sit here. Time to get another echo even tho it's barely been 6 months since a perfectly nice one. What happened so fast?

    And my front tooth cracked and broke so I need to see my dentist monday and I'm supposed to also see my cardiologist Monday now and if I have to pre-med, forget it - I am out of time. I'm supposed to be on a plane from Seattle to Miami on the 17th and it's just looking really dicey right now. Oh did I mention there might be a ferry strike so getting off the island and over to the airport was already dicey without my heart showing up to the party with engraved invitation in hand.

    I had a lot of non-HCM surgeries this year and very painful health problems straight from January up until now, and NOW THIS? I was so sure by the end of the year things would start looking up again and this just feels like an introduction to a nightmare at this point.

    I'm so disappointed. I forced myself over and over to keep up with all the medical demands... all year with the promise that it would all be resolved by the end of 2003 and it would be behind me.

    I need to see about a specialist BAD and get to the bottom of this pronto. But I also have a non-refundable ticket to Florida... I feel so trapped in a vise right now.

    *sigh*
    Deedee

    Formally known as Sue Ellen
    Yes, I'm an agent of the devil, but my duties are largely ceremonial...
    »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
    Murmur detected in childhood (3rd gen, 3 clear siblings)
    Chronic dyspnea, dizziness & palpitations (21+)
    Echocardiogram showing 3X thicknesses 2000
    Cardiac CT 2009 no significant obstruction or plaque (Yay!)
    Cardiac MRI 2010 showing septal scarring (Boo!)
    Verapamil 280mg a day (metoprolol starved extremities)
    ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

  • #2
    Re: 6 hours in ER for no event

    Take care of yourself FIRST. Travel can be done anytime. Are you obstructed? How bad is the chest pain?
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Re: 6 hours in ER for no event

      I'm very sorry you're not feeling well. As far as the dentist is concerned... the normal routine is 2000mg of amoxicillin, just one hour before you see the dentist, so there is still time to pre-med before your visit. Your dentist or cardiologist can call that in for you first thing monday morning if you need it. As far as the rest, I can't really help you but I hope you get to feeling better real soon!
      "Some days you're the dog... some days you're the hydrant."

      Comment


      • #4
        Re: 6 hours in ER for no event

        Ooooh just the day before? I didn't know that, that's great to hear, thank you so much. That really relieves a lot of stress I was having over all this trip preparation and the timing issues.

        Since I never was advised to pre-med I didn't know anything about it. I can't have the epinephrine, but that's my only instruction so far at the dentists.


        Deedee
        »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
        Murmur detected in childhood (3rd gen, 3 clear siblings)
        Chronic dyspnea, dizziness & palpitations (21+)
        Echocardiogram showing 3X thicknesses 2000
        Cardiac CT 2009 no significant obstruction or plaque (Yay!)
        Cardiac MRI 2010 showing septal scarring (Boo!)
        Verapamil 280mg a day (metoprolol starved extremities)
        ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

        Comment


        • #5
          Re: 6 hours in ER for no event

          Deedee, yep, you just have to take the meds one hour before the appt. I hope you're feeling better soon.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment


          • #6
            Re: 6 hours in ER for no event

            oops, yes! just the HOUR before... thank you.
            »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
            Murmur detected in childhood (3rd gen, 3 clear siblings)
            Chronic dyspnea, dizziness & palpitations (21+)
            Echocardiogram showing 3X thicknesses 2000
            Cardiac CT 2009 no significant obstruction or plaque (Yay!)
            Cardiac MRI 2010 showing septal scarring (Boo!)
            Verapamil 280mg a day (metoprolol starved extremities)
            ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

            Comment


            • #7
              Re: 6 hours in ER for no event

              HA! Nobody even wants to see me until NEXT Monday - apparently there is no cause for concern, or if there is, too bad.

              My cardiologist's nurse pretty much layed it on the line by just saying there's nothing else available, sorta take it or leave it, so I took it.

              I've been doing better since after this weekend so I am not freaking out... nobody else is, so I guess there's no reason for me to be anyway.

              Just a question - I am also pursuing 2 infections right now, and nobody is risking running with scissors about them either... my question is - how dangerous are infections elsewhere in the body to HCMers?

              Is there a webpage about things that are more important for us to stay on top of so I don't bore everyone with my constant questions?

              Thanks,
              Deedee
              »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
              Murmur detected in childhood (3rd gen, 3 clear siblings)
              Chronic dyspnea, dizziness & palpitations (21+)
              Echocardiogram showing 3X thicknesses 2000
              Cardiac CT 2009 no significant obstruction or plaque (Yay!)
              Cardiac MRI 2010 showing septal scarring (Boo!)
              Verapamil 280mg a day (metoprolol starved extremities)
              ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

              Comment


              • #8
                Re: 6 hours in ER for no event

                Infections are never 'good' - but not likely to cause any bigger trouble then they would in others...with the exception of endocarditis - and infection in the heart.
                typical bugs and infections are pretty much like everyone else.


                Be well!
                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment


                • #9
                  Re: 6 hours in ER for no event

                  Okay how come we have the pre-med at the dentist then?

                  I am not trying to be stupid, I really can't figure it out.
                  »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
                  Murmur detected in childhood (3rd gen, 3 clear siblings)
                  Chronic dyspnea, dizziness & palpitations (21+)
                  Echocardiogram showing 3X thicknesses 2000
                  Cardiac CT 2009 no significant obstruction or plaque (Yay!)
                  Cardiac MRI 2010 showing septal scarring (Boo!)
                  Verapamil 280mg a day (metoprolol starved extremities)
                  ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

                  Comment


                  • #10
                    Re: 6 hours in ER for no event

                    Deedee, the mouth is full of bacteria. Almost any dental procedure can nick the gums and cause a place for the bacteria to enter the bloodstream. Some of this bacteria has been shown to cause endocarditis, which is an infection of the heart muscle. I don't have HCM, but have had mitral valve prolapse all my life. I've always premedicated before dental procedures.

                    Reenie
                    Reenie

                    ****************
                    Husband has HCM.
                    3 kids - ages 23, 21, & 19. All presently clear of HCM.

                    Comment

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