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What's that excited tickly feeling?

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Deedee "family heart murmur" detected in early childhood, HCM diagnosed in 2000, ICD 2010
Deedee
Deedee
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  • #1

    What's that excited tickly feeling?

    I have been having this excited ticklish feeling that causes me to catch my breath and do some controlled breathing to help it calm down. It's not painful but it's just really hard to explain. It's sort of in my throat tickles, but it's "more" than just a tickly throat. OH it's so hard to describe!!

    I don't ever remember having it before - but the last couple of weeks I've had it at least once a day. It's like my heart is very excited even tho I'm just sitting there reading or something. It goes away after about 10 seconds or even less, but for something so short, believe me, it's very noticeable.

    Anyone recognize this?

    ~Deedee
    »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
    Murmur detected in childhood (3rd gen, 3 clear siblings)
    Chronic dyspnea, dizziness & palpitations (21+)
    Echocardiogram showing 3X thicknesses 2000
    Cardiac CT 2009 no significant obstruction or plaque (Yay!)
    Cardiac MRI 2010 showing septal scarring (Boo!)
    Verapamil 280mg a day (metoprolol starved extremities)
    ICD MAR 2010 - Canadian Trials St. Jude FORTIFY
    Tags: None
  • #2
    Re: What's that excited tickly feeling?

    Sure,

    I get something very similar, but it's usually something that lasts for hours or days at a time. For me, it's kind of an all-over, tickling, buzzing, vibrating, toe-curling, butterflies-in-my-stomach feeling, sort of like i'm anxious or anticipating something. I guess it really is hard to describe.

    Anyway, I'm not sure if that's what you mean, but there's a whole lot of individual little quirks that come with having HCM, and this particular one I rather enjoy. I get so much work done when I have it!

    Jim
    "Some days you're the dog... some days you're the hydrant."

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    • #3
      Re: What's that excited tickly feeling?

      Are you obstucted? If so what is your gradient?

      Have you ever been in A-fib?

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment

      • #4
        Re: What's that excited tickly feeling?

        I get a weird feeling too. It is like you are here but you're not. I don't know how else to explain it. I went to the hospital with it once, and they started putting blood thinners into my stomach for 24 hours. They never did tell me what it was. It was really scarey.
        Life is too short to worry about the trival things in life, So live life to the fullest.

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        • #5
          Re: What's that excited tickly feeling?

          Sounds like what I experience with atrial fibrillation.

          Sue

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          • #6
            Re: What's that excited tickly feeling?

            I thought of some words that describe it better I think!

            Like a frightened butterfly is loose in my upper cheset for about 3 seconds.

            That analogy just popped into my head and it fits it very well I think.

            ~Deedee

            I don't think I've had any A-fib problems so that you'd notice, and I don't think I'm obstructed either, to answer those questions.
            »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
            Murmur detected in childhood (3rd gen, 3 clear siblings)
            Chronic dyspnea, dizziness & palpitations (21+)
            Echocardiogram showing 3X thicknesses 2000
            Cardiac CT 2009 no significant obstruction or plaque (Yay!)
            Cardiac MRI 2010 showing septal scarring (Boo!)
            Verapamil 280mg a day (metoprolol starved extremities)
            ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

            Comment

            • #7
              Re: What's that excited tickly feeling?

              Hi Sue.

              What you describe sounds exactly like a-fib. I have had several bouts and am on blood thinners all the time. It was the butterfly analogy that got to me. I have often described a-fib as a fluttering, like a butterfly, in my chest. Thank God yours only lasts a few seconds. My last bout was 36 hours.
              Peace,

              Leon
              God Squad co-moderator
              Nothing is as gentle as strength and nothing is as strong as gentleness

              Comment

              • #8
                Re: What's that excited tickly feeling?

                Deedee, I don't have HCM but I have had episodes of what my records call possible atrial flutter and probable atrial flutter. I always felt like there were butterflies in there beating madly to get out. I'd go to the doctor. He would probably put you on a Holter monitor to see if he can catch an episode on tape. Then you can go from there on what to do about it.

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

                Comment

                • #9
                  Re: What's that excited tickly feeling?

                  Don't ya just gotta love Jim's comments? Ooops I think what he said got edited but I enjoyed it anyway.

                  I have had everything from the echo to the holter but I can see it's time for another round. He usually lets me go a year in between unless something else freaks people out and then I end up sooner.

                  As it's only a few seconds I think I can go on vacation and do this in the new year. Maybe then I can hook up with a specialist. I hope there is one on the island as the round trip ferry to the mainland is over $120 so you can imagine how often I get over there and I'm already going next week to fly from Seattle to Miami as it is.

                  Thanks for your wonderful input everybody.

                  Deedee

                  ps. can my user name be changed?
                  »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
                  Murmur detected in childhood (3rd gen, 3 clear siblings)
                  Chronic dyspnea, dizziness & palpitations (21+)
                  Echocardiogram showing 3X thicknesses 2000
                  Cardiac CT 2009 no significant obstruction or plaque (Yay!)
                  Cardiac MRI 2010 showing septal scarring (Boo!)
                  Verapamil 280mg a day (metoprolol starved extremities)
                  ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

                  Comment

                  • #10
                    Re: What's that excited tickly feeling?

                    LOL DeeDee,

                    I always seem to hit the 'submit' button rather than the 'preview' button before i'm finished editing myself, then i have to go back in and edit one or two times after the message has already been posted. If you see that my posts have been edited... it's just me, goofing up again

                    Hope you're feeling better.

                    Jim
                    "Some days you're the dog... some days you're the hydrant."

                    Comment

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