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No symptoms when first diagnosed. How long before symptoms ?

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  • #1

    No symptoms when first diagnosed. How long before symptoms ?

    I would like to hear from people that had no symptoms when first diagnosed with HOCM but later developed symptoms. How long after being diagnosed did you develop symptoms? Why do some people never develop symptoms? So far I tire easily , but I never get short of breath.
    septal myectomy on Jan. 27, 2005
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  • #2
    Re: No symptoms when first diagnosed. How long before sympto

    When I was diagnosed at 12 years - I did not think I had any symptoms. I started with some symptoms a few years later and then over my life it slowly change.
    However, some people live for 20-30 years with out ny symptoms at all, it is all really a personal issue.

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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