If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • #1

    Hi new to this forum just saying hello

    Hi, I am new to this forum and just wanted to say hi to you all. I have recently been diagnosed with HCM after I went to bed and I woke at three am in the morning with tremendous chest pains and a numbness in my right arm ( which even went a purplish colour for a while). I sat up and accidently woke my partner who was a little frightened and wanted to phone an ambulance but not being a person who likes hospitals I said no. The pain then subsided and I laid down to go back to sleep and then after about fifteen minutes it started again. My partner then phoned the nurse aid hotline, which is a phoneline we have in England to phone for advice on medical matters she was advised to phone and ambulance so at four o clock in the morning I was whisked to the local hospital and placed on a ECG machine and had blood tests taken and given pure oxygen. I was then ecg'd for the rest of the day and most of the next night every four hours after which I felt fine and went home to await results of the tests. I was then asked to visit my local hospital for a few more test which included a excercise test and was informed I had HCM. I know very little about this and have joined here to find out more and what my limitations are as regards to what I can do and not do. I hope I will get some good advice and reassurances from this site and thankyou all for reading this posting and any advice you may be able to give me in advance. Yours Dave.
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  • #2
    Re: Hi new to this forum just saying hello

    Welcome Dave. This is the place for you to ask questions and gather inportant information. HCM is serious, but not a death sentence. That being said, it usually does bring about lifestyle changes.

    This forum gives you the opportunity to educate yourself about HCM. The people are knowledgable, friendly and caring. We look forward to getting to know you.

    Peace,

    Leon
    God Squad co-moderator
    Nothing is as gentle as strength and nothing is as strong as gentleness

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    • #3
      Re: Hi new to this forum just saying hello

      Welcome to the board!

      I hope you make yourself "at home" here!

      Best wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: Hi new to this forum just saying hello

        Welcome dave

        I hope you find this site as helpful as I have,


        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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        • #5
          Re: Hi new to this forum just saying hello

          Lisa forgot to mention that www.cardiomyopathy.org is the UK version of the HCMA. You are very, very welcome here, but most insurance and hospital type of info will be specific to the US. The UK folks will obviously be up on who to see there and so on.

          take care,

          s

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