Lisa may remember me from helping my sister-in-law, Cheri, who has HOCM. She talked with another SIL, Dawn, at length about the disease. My husband also has HOCM and earlier this year our daughter who at the time was 14 months old was diagnosed as well. We are currently starting the process of being involved in a research study at Massachusetts General to find the gene.
What my in-laws would like to know is this:
1. If another family member has the gene, does that mean he or she will DEFINITELY have HOCM?
2. Can you carry it and not express it?
3. If he or she has the gene, can they be just "at risk" for having HOCM?
I'd like to get a definite answer of yes or no, but know that there may not be one. Any help would be appreciated!!
What my in-laws would like to know is this:
1. If another family member has the gene, does that mean he or she will DEFINITELY have HOCM?
2. Can you carry it and not express it?
3. If he or she has the gene, can they be just "at risk" for having HOCM?
I'd like to get a definite answer of yes or no, but know that there may not be one. Any help would be appreciated!!
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