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On a positive note...

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mtlieb Find out more about mtlieb
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  • On a positive note...

    Hi all,

    I've had some problems for the last few months, and a couple trips to the ER that i really could have done without, but something happened the other night that i just think is so cool!

    When i was at the ER last night getting some IV antibiotics for this frickin staph infection, a young lady poked her head into my room and asked me very shyly if she could listen to my heart. At first I didn't know what the heck she was talking about, but as it turns out she is a physician's assistant, she had never listened to the heart of someone who has HCM, and she wanted to listen to mine just for the learning experience. Apparently she does a lot of medicals for young athletes. I was so thrilled, i said 'good lord, of course you can' and told her to get her butt in here as well as anyone else who wanted a 'peek' at me. I was so excited that she and her friends wanted to learn something about HCM, and maybe get a feel for what it sounds like in a real human being.

    Well, needless to say, i ended up having quite a few physician's assistants and interns peeking their heads into my room every half hour and wanting to listen to my heart all night. I felt like somewhat of a circus freak at first, and one young fella even told me i should start charging 20 bucks a pop. LOL. But it really helped to restore my faith in the medical profession that these young folks wanted to learn from me and listen to what an HCM heart sounds like.

    Cool, huh?

    Jim
    "Some days you're the dog... some days you're the hydrant."

  • #2
    Re: On a positive note...

    Jim that was a great story, i think all doctors should study this disease, it's time, did they ask you any questions? I like hearing stories like this, It makes you feel like there is hope, I think that was great of you to let them listen with not feeling well yourself. Thank you Jim

    Take Care
    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

    Comment


    • #3
      Re: On a positive note...

      Shirley,

      Well... as groggy, tired, and frustrated as i was last night, it still thrilled me to have them all want to listen to my heart. Unfortunately, i did have to tell the last one that if i had to 'bear down' (valsalva) one more time, he was going to have to get me some Depends undergarments. LOL. Maybe that was too much info. Hey, give me a break, i've been on antibiotics for ten weeks

      They asked me a ton of good questions Shirley, and i was happy to answer them.

      Jim
      "Some days you're the dog... some days you're the hydrant."

      Comment


      • #4
        Re: On a positive note...

        Jim

        I like that depends thing LOL i still think you were great to let them do that, I hope this round fixes the staph infection, you know the dr. actually gave me Saline drops along with antibiotics did they give you anything else
        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

        Comment


        • #5
          Re: On a positive note...

          Jim, that's wonderful. When my husband was diagnosed the echo tech asked if she could make a second tape because he's a "text book case" and she wanted to be able to help train new doctors. Of course we obliged them.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment


          • #6
            Re: On a positive note...

            I have been there too...I have never turned anyone away who wanted to learn!!

            I am glad you were able to be the teacher!!

            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: On a positive note...

              Jim, I know that feeling, when I was first diagnosed, early 70s my first HCM doctor was also a teacher at the university connected to the hospital.
              Whenever he lectured on HCM (not called HCM back than), he would have me and a few others come in.
              We would be right on stage and would each describe our symptoms and the students would ask questions.
              Then the doctor would use slides and illustrations to explain to the students what was causing our symptoms.
              I really felt like I was helping future doctors treat future patients.
              Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
              So if you are capable of thought then you are capable of great things
              Good luck and stay well.
              Glen

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              • #8
                Re: On a positive note...

                Jim
                Your story reminds me of an interesting episode.
                In the seventees and eightees my father had to be frequently hospitalised. He was considered a text book case and his heart sounds were recorded for a M.D. thesis on phonography of heart. His doctor never missed an opportunity to send the trainees to examine him and hear his heart sound. Non-HCM specialists sometimes confused his condition to be due to defect of two valves: a case of aortic stenosis and mitral regurgitation. Father always took pride that he was participating in the training of cardiologists. Once during a good period he was not hospitalised for a year. The doctor sent a request to father to be available to students on a certain day and time at the hospital. He gladly agreed. Once on the hospital bed, the students kept on coming one by one and he kept on explaining all the symptoms, diagnosis (it used to be called IHSS) and medicines to them. At the end of the session, father discoverd that he was called in the medical college on that day as a subject in an examination for the cardiology paper and all the candidates had answered the questions right!
                RG

                Comment


                • #9
                  Re: On a positive note...

                  Great news about your being a training model and great news that someone finally stuck you in the hospital for IV antibiotics. Hope that does the trick in getting rid of your infection. Best wishes for your health! Sue

                  Comment


                  • #10
                    Re: On a positive note...

                    Sorry... i erased this post. It was just too whiney
                    "Some days you're the dog... some days you're the hydrant."

                    Comment


                    • #11
                      Re: On a positive note...

                      BE CAREFUL with the sinus stuff. I know 2 people who ran into serious trouble with that procedure - one did get meningitis, the other had 6 months of secondary infections. Seek a 2nd opinion before you do that PLEASE.

                      Talk to Dr. Maron when he gets back next week, see if he can talk to your doc at home and work out a plan, can not hurt to ask!

                      Be well...and try to stay on the meds... School is important but YOU are more important!!

                      Lisa
                      Knowledge is power ... Stay informed!
                      YOU can make a difference - all you have to do is try!

                      Dx age 12 current age 46 and counting!
                      lost: 5 family members to HCM (SCD, Stroke, CHF)
                      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                      Therapy - ICD (implanted 97, 01, 04 and 11, medication
                      Currently not obstructed
                      Complications - unnecessary pacemaker and stroke (unrelated to each other)

                      Comment

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