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Benny Find out more about Benny
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  • Any advice

    First, I know I need to go see my doctor but I still owe some money, so I'm gonna wait on that.

    I was diagnosed about a year ago, and things have been OK. I even had the heart catheterization done (and boy was that enjoyable ) and the doctors said everything's good, I'm supposed to come back around May.

    But lately I've been having palpitations, I guess. Sometimes I'll be sitting in bed just fascinated by what my heart is doing. It seems like there's an out of rhythm beat here, then a skipped beat there. I've noticed it the most while I'm stationary, like when I'm driving.

    Does anybody have any advice or possibly any info on what's causing this? I mean, is it usually because I've eaten the wrong food or something or does this mean I need to finish paying that bill and see my doctor right away.

    And, just so you know, I am going to pay the bills. My doctor has been great. Except for that catheterization thing, that wasn't fun at all.

  • #2
    Re: Any advice

    Benny your doctor would be the best one to ask, about your heart beats, he may put a holter monitor on you for a day or two. i have weird beats all the time, my doctor says if they don't last but a few seconds then don't worry about it, but he did put a holter monitor though



    Will the doctor not see you because you owe a bill or is that your choice?
    It just steams me when drs. won't see you because you owe a bill, i think sometimes doctors have forgotten why they became doctors


    Take care
    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

    Comment


    • #3
      Re: Any advice

      Benny,

      I owe money to about a hundred different doctors right now, starting from my cancer diagnosis three years ago to my HCM diagnosis last year. I think it might actually take me about a hundred years to pay them all off if truth be told. But that's not going to stop me from getting the treatment i need. You do whatever you need to bud, to keep you healthy.

      Concern #1 = Stay Alive
      Concern #2 = Pay the bills

      Hang in there. There are lots of programs to help. Trust me, i've done a lot of research on this. Send me a PM if i can help you in any way.

      Jim
      "Some days you're the dog... some days you're the hydrant."

      Comment


      • #4
        Re: Any advice

        Jim

        My neice did not go to the doctor because she owed a bill (he wouldn't see her) i was so mad, Her mom had to pay 60.00 dollars before he would see her, but she hadn't been feeling well for months, so her mother felt she had no choice, good thing though the echo showed her obstruction was back septum of 3.7 cm so aunt shirley started making calls. I called Lisa she called her and now things are rolling thanks to her, that was a great deal off of my shoulders. so that is why i get so mad when a chonic patient needs to go to the dr. i don't think they should be turned down because they have no money
        Take care



        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

        Comment


        • #5
          Re: Any advice

          Benny, the feeling you are having is probably premature ventricular contractions, PVC's. You really do need to go to the doctor, though, so that you know for sure. PVC's are normal with everyone, although HCM'ers seem to get more of them. They are usually harmless, unless they're a precursor to something else.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment


          • #6
            Re: Any advice

            Benny,
            Please go to the doctor - tell them what is going on and offer to pay what you can. MOST doctors will understand and try to help you if money is tight.

            Your symptoms may be nothing major - -or may be something serious - honestly a message board is not the place to try to hammer that out. I am concerned and if you need to find a specialist to help you - call me and I will do what I can. Do you have any insurance coverage at this time?


            Be well and please take care of yourself,

            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: Any advice

              i guess i've been really lucky. my cardiologist would see me for $10 a visit when i didn't have insurance. i've also had a urologist return my check to me when i explained my financial situation to them. i think if you have a relationship with a doctor, they are going to cut you some slack in the money department.

              you can't be denied emergency treatmnet for lack of money either. just so you know.

              s

              Comment


              • #8
                Re: Any advice

                Man, this is the coolest place ever.

                I haven't gone to the doctor by my choice. I just don't feel right going when I owe money. But, I guess I'll take everybody's advice and go.

                By the way, do you think my heart going weird could be because of stress. I have a relatively stressful job. Just curious.

                Oh, and I do have insurance so, totalled up, I probably don't owe any outrageous amount. And I do see a specialist and he's been great, which is why I feel awkward going when I owe money. But I guess I'll have to get over that awkward feeling and just go.

                Thanks.

                Benny

                Comment


                • #9
                  Re: Any advice

                  palpitations can be caused by stress, diet, dehydration, alcohol, HCM, and probably a few things i'm forgetting. that is why is it so important to get checked out because there is no way to tell from here (or from yourself, by yourself) if the palpitations you have are simply run-of-the-mill HCM symptoms that you have to live with or if your heart is in atrial fibrillation and needs cardioversion or somewhere in between.

                  avoid dark chocolate, black tea, coffee, alcohol, heavy meals, super cold drinks, excessive carbohydrates, and as much stress as possible to see if any of these cut down on your palpitations.

                  and go to the doctor!!

                  s

                  by the way ---the odds of your doctor having any idea whatsoever if you owe money or not are super low. only the front office really ever pays attention, unless you bring it up to the doctor yourself.

                  Comment


                  • #10
                    Re: Any advice

                    Hi Benny. I was having a real problem with irregular heartbeat. With the cells in our septums being so screwed up it's a wonder we get any beats right. I work for my states Unemloyment Insurance dept,,, very stressfull, and I was drinking to much caffine and not enough water. I am down to only one cup of tea a day, lots of water and yes, work on that stress. Our little pumpers don't like to much extra stimulation.
                    My erratic beats have just about disappeared. Good luck. Eat well and stay hydrated.

                    Comment


                    • #11
                      Re: Any advice

                      Benny--I have had palpatations for years and didn't think much about them--not that I liked having them. I did have them checked out and no one said much about them or did anything to make them better. Then at some point I was told that they were serious and I ended up with an implanted defibrillator (totally paid for by insurance, no less) which recently saved my life. Whether they were serious all along or changed at some point, I don't know. So check it out. And then check it out again in a few years.

                      But do take the advice about dark chocolate, coffee, etc. Now that I am retired from my stressful job, avoiding my beloved chocolate, and drinking only one small cup of coffee a day, I have very few palpatations.

                      Sue

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                      • #12
                        Re: Any advice

                        So, how common are palpitations supposed to be? I mean, am I supposed to notice them twice a day, twice an hour, twice a minute; what's normal?

                        And about the foods to avoid, what is excessive carbohydrates?

                        Comment


                        • #13
                          Re: Any advice

                          Benny, what's normal for you wouldn't necessarily be what's normal for someone else. Only your doctor can tell you what you should expect.

                          Reenie
                          Reenie

                          ****************
                          Husband has HCM.
                          3 kids - ages 23, 21, & 19. All presently clear of HCM.

                          Comment


                          • #14
                            Re: Any advice

                            well "normal" for normal and "normal" for hcm are different animals.

                            this is why you need to see the doctor and find out what kind of palpitations they are and discuss how often they are and how troublesome.

                            s

                            Comment


                            • #15
                              Re: Any advice

                              Benny, the doctor(s) would probably have you wear a Holter Monitor so they can determine if your activity is within normal, HCM normal range or something they need to do something about.
                              They can determine if they don't have to do anything, treat it with drugs, install a pacemaker or ICD.
                              That's why it is really important to get hooked up with HCM specialist.
                              Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                              So if you are capable of thought then you are capable of great things
                              Good luck and stay well.
                              Glen

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