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Lisa Salberg Find out more about Lisa Salberg
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  • #1

    Update from AHA

    Hello to all!

    As you may know the HCMA just attended the AHA meeting in Orlando Florida. There were some significant data presented on HCM and rather than mention them all here on the board we are in the process of re-writting some data on the website. Look for updates in the area of Alcohol Septal Ablation, Prevelance, and various other areas.

    We will complete these updates within the week. A great big thank you to Mary Sharp and Bill Fredricks who made our time in Orlando wonderful! Mary, thanks for the ride and the wonderful time at Epcot (somehow my daughter found out...I think Adam slipped!) Bill I look forward to moving forward on the items we discussed. Thank BOTH of you for helping out in the booth!

    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
  • #2
    Re: Update from AHA

    Big thanks to Linda!

    Thank you for the card it was beautiful! You didn't have to do what you did!

    Mary

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    • #3
      Re: Update from AHA

      Lisa and Linda BOTH appreciated all you did. Thanks again Linda

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      • #4
        Re: Update from AHA

        It made my day to get that card! Anytime you guys come back call me up!

        Mary

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        • #5
          Re: Update from AHA

          YES WE DID!!!

          THANK YOU THANK YOU!!!


          lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

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