If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Results Received

Collapse

About the Author

Collapse

Pat B Find out more about Pat B
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Results Received

    I received a call from my PC's office (nurse) that my blood test results were ok and said nothing else, I was just left hanging. I told her I knew they would be. After reading post's from this site, I am going to make a list of questions to ask my heart doctor since I know what questions to ask. I'm also going to get a copy of my ego. Hopefully I will get some answers, if not, I'm just going to stop my meds (their to expensive anyways) and live with the SOB, chest pain, light headness, fatigue, and palpations. It couldn't be any worse that what it is now. As the old saying goes, I'm sick and tired of being sick and tired.

    In reading a post I read that one of the moderator's daughter saw stars,
    I have been seeing these stars since I was a teenager, but I never told any of my doctor's for I thought they would think I was crazy; is this some kind of a sympton?

    Pat B
    Pat
    Virginia

  • #2
    Re: Results Received

    Pat

    Don't just stop cold turkey, with the meds, you need to wheen yourself off of them, and i wouldn't do it before talking with a dr. It could possibly make you worse, Just hang in there, i would call and set up a time for a consultation with him. and have your list in hand, and then if you are not satisfied, find another dr. Have you called Lisa yet? It is important you see a dr. that can deal with this. you take care and i hope things work out for you
    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

    Comment


    • #3
      Re: Results Received

      Pat,

      You don't have to live with your symptoms. Just because one medication didn't work doesn't mean something else won't. There are lots of different heart medications and some people find that one beta-blocker makes them feel better than another one as they are all a little different, even though they are in the same family. And they aren't the only kind of drug to take, either.

      Furthermore, Shirley is right. You must NOT stop taking a beta-blocker without weening yourself off of it very slowly or it will make you worse. Not fun.

      THe whole point of the HCMA is to help you get the help you need --and that isn't just moral support here on the board. The office helps people find the doctors they need and the rest of the site educates you on the condition.

      So please use all of the resources available to you.

      take care,

      seb

      Comment


      • #4
        Re: Results Received

        Shirley & Sarah

        Your'e right, I'll give Lisa a call Monday and see what drs. are close to me. The last time I went off my meds in ended up in intensive care for 3 days.

        I used to be on Inderal but my lung doctor took me off of it because he thought is was making me wheeze. Maybe I should try it again.

        Thanks for your advice and I'll keep you posted.

        Pat B
        Pat
        Virginia

        Comment


        • #5
          Re: Results Received

          Pat,
          Please do NOT stop your meds.
          I will be in the office on Tuesday - call me then.
          Unless you are online now it is 11:15 eastern time on saturday and I am in the office if you want to try to call me now.

          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment


          • #6
            Re: Results Received

            beta-blockers aren't good if you have asthama and i think lung issues can be a side effect, so calcium channel blockers may be in your future. there are lots of options. just need the right doctor.

            hang in there,

            s

            Comment

            Today's Birthdays

            Collapse

            Working...
            X