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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Just came back from the director for the Cardiac Rehab here in my hometown. I asked him to look up HOCM before he worked on my Rehab plan. He asked me to share any information that I could find with him. Is there any official information out there regarding exercise? Thanks for any information that you can provide.
Hi, Kathy. Seems that most everyone can tolerate different levels of exercise. That being said, the general rule of thumb is to stick with low-intensity, non-competitive activities such as walking, bowling, golfing, etc.
If you read through the messages on the exercise-specific category of this board, you will read messages from some who do much more. Don't take this as a green light as we are all different. I had to give up my favorite activity (a competitive sport) based on the advice of my HCM specialist and Dr. Barry Maron's (world's leading expert on HCM) general statement that there should be "no competitive sports" for HCM patients.
Another point my specialist has made with me is to never exert myself to the point where I'm out of breath and can't speak a full sentence. I find myself on the treadmill sometimes saying out loud, "I'm speaking in full sentences, one, two, three, four and repeat." But then again, I'm goofy like that.
Please search the board for "cardiac rehab" as it has been addressed.
Tommy--Cardiac rehab is a specific regime done in a hospital or rehab center for surgery patients (usually bypass). This is very different from just exercise for yourself.
Cardiac rehab is almost exclusively designed for heart attack patients and most of the techs have never heard of HCM. You MUST have the rehab techs talk to your HCM specialist and have them follow the specialist's guidelines for your target heart rate, etc. as they will be different than those for a regular rehab patient.
I don't think there is any official guidelines on cardiac rehab for HCMers because it just isn't done on/for us as a general rule. The Cleveland Clinic may have something on their web site. However, it is best for your surgeon/specialist to supervise.
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