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Exercise and HCM?

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KathyG Find out more about KathyG
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  • Exercise and HCM?

    Just came back from the director for the Cardiac Rehab here in my hometown. I asked him to look up HOCM before he worked on my Rehab plan. He asked me to share any information that I could find with him. Is there any official information out there regarding exercise? Thanks for any information that you can provide.

    Kathy

  • #2
    Re: Exercise and HCM?

    Hi, Kathy. Seems that most everyone can tolerate different levels of exercise. That being said, the general rule of thumb is to stick with low-intensity, non-competitive activities such as walking, bowling, golfing, etc.

    If you read through the messages on the exercise-specific category of this board, you will read messages from some who do much more. Don't take this as a green light as we are all different. I had to give up my favorite activity (a competitive sport) based on the advice of my HCM specialist and Dr. Barry Maron's (world's leading expert on HCM) general statement that there should be "no competitive sports" for HCM patients.

    Another point my specialist has made with me is to never exert myself to the point where I'm out of breath and can't speak a full sentence. I find myself on the treadmill sometimes saying out loud, "I'm speaking in full sentences, one, two, three, four and repeat." But then again, I'm goofy like that.

    Good luck to you!
    Tom Mc.
    Apical HCM

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    • #3
      Re: Exercise and HCM?

      Please search the board for "cardiac rehab" as it has been addressed.

      Tommy--Cardiac rehab is a specific regime done in a hospital or rehab center for surgery patients (usually bypass). This is very different from just exercise for yourself.

      Cardiac rehab is almost exclusively designed for heart attack patients and most of the techs have never heard of HCM. You MUST have the rehab techs talk to your HCM specialist and have them follow the specialist's guidelines for your target heart rate, etc. as they will be different than those for a regular rehab patient.

      I don't think there is any official guidelines on cardiac rehab for HCMers because it just isn't done on/for us as a general rule. The Cleveland Clinic may have something on their web site. However, it is best for your surgeon/specialist to supervise.

      take care,

      s

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