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back from richmond


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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • back from richmond

    Hi everyone

    I'm back from Richmond, Everything went ok, not great but not bad either, my septal thickening has not changed from 7 months ago, but Dr. gilligan said i was not a mild case, he said my heart is very stiff, that is why i'm being paced, they fine tuned me to the milla minute, he said that might help my heart to relax also. The doctor took me off beta blockers and is trying calcium channel blockers, he also said my mitral valve is really hitting hard against my septum, i haven't gotten my actual echo resuts in the mail yet, i guess i will find out my EF then, i go back to see him in January, he said he wants to see me every 3 months, and said he would be talking to me over the phone, being i live 2 hours away, i really like this doctor, he took the time and answered alot of questions i had, and i believe he was very honest with me, i have to thank Lisa for recommending doctor Gilligan to me . Well everyone take care, and have a great night Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

  • #2
    Re: back from richmond

    He is a very special person. He will take the time to assist you with everything you need. I am glad you are on the path to quality care for your HCM!
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Re: back from richmond

      I am glad that you liked your Specialist too. Hope you will start feeling better and get things under control,