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Northern California office

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Chris Brown
Chris Brown
Chris Brown
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  • #1

    Northern California office

    Hi HCM Gang,

    Whatever happened to the No. Cal Office. Did you ever find any HCM specialist here?
    Testimony.
    Last week I went on a field trip with my 2 sons and we stayed over night on a aircraft carrier the USS Hornet. Their were 5 flights of stairs and ladders we climbed for 24 hours. I would not of been able to climb these stairs 4 years ago, since I received my dual mode pacer my obstruction has decreased and I now live in a 2 story house.
    Thanks
    Chris
    Tags: None
  • #2
    Re: Northern California office

    [quote="Chris Brown"]Hi HCM Gang,

    "Whatever happened to the No. Cal Office. Did you ever find any HCM specialist here?"

    Quite some time ago there was some disscusion of a "West Coast Clinic" and as I recall the Dr. was in the process of moving? I am also hopeful of hearing if there has been any progress, we folks on the west coast REALLY need something a little closer. Please advise .. Thankyou Rick
    \"A Misty Morning Does Not Signify A Cloudy Day\'

    Comment

    • #3
      Re: Northern California office

      Slow down... not everybody at once! Seriously does anybody have any info on this? Thank you
      \"A Misty Morning Does Not Signify A Cloudy Day\'

      Comment

      • #4
        Re: Northern California office

        Richard,
        Lisa has been telling for 1 & 1/2 years to be patient & that she will have information on a specialist in Northern California. Maybe this will get a response.
        Good Luck
        Chris

        Comment

        • #5
          Re: Northern California office

          There is a doc who has started to form an HCM center - He moved from Boston to Stanford Ca over the summer -
          I have a call into him now to check status.
          Hey Chris - thanks for the guilt trip
          FYI - I will be in San Fransisco in May for NASPE - volunteers would be nice to help at the booth!


          I will keep you all posted!
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

          • #6
            Re: Northern California office

            Originally posted by Lisa Salberg
            There is a doc who has started to form an HCM center - He moved from Boston to Stanford Ca over the summer -
            I have a call into him now to check status.

            FYI - I will be in San Fransisco in May for NASPE - volunteers would be nice to help at the booth!


            I will keep you all posted!
            Lisa
            Lisa thankyou for the reply, I am looking forward to hearing more about this "HCM CENTER" and their specialists. Do you have any names with their backgrounds? Will myectomys and ablations be available there? Which hospital? I certainly don't expect an answer to all this questions right away but as soon as you find out please enlighten us! Tell us more about your needs at NASPE, I.E. (how long, when, and what does a volunteer expect to be doing?) I am not sure if I can help out then but would like to know more, just in case.. Thanks again from a information hungry west coaster!
            \"A Misty Morning Does Not Signify A Cloudy Day\'

            Comment

            • #7
              Re: Northern California office

              Lisa, Have you heard anything yet about who this Doctor in California? Looking forward to some news! Thanks, Rick
              \"A Misty Morning Does Not Signify A Cloudy Day\'

              Comment

              • #8
                Re: Northern California office

                They called last week - and are nearly ready to start seeing people. I will post the contact information very soon.

                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment

                • #9
                  Re: Northern California office

                  Lisa, thankyou ! I for one will be looking forward to hearing all the details! I think that many of us that suffer with HCM will be glad that there will be a specialist on our side of the country. It will be more cost effective for us and our familys. Thanks Rick
                  \"A Misty Morning Does Not Signify A Cloudy Day\'

                  Comment

                  • #10
                    Re: Northern California office

                    happy to help!

                    I hope to post the information very soon!
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment

                    • #11
                      Re: Northern California office

                      Thank you LIsa,
                      Hope you are having a Happy Holidays. You deserve it for working so hard the rest of the year.. Thanks for all your work you do at the HCMA.
                      Looking forward to hearing about the No Cal specialist.
                      Sincerely
                      Chris Brown

                      Comment

                      • #12
                        Re: Northern California office

                        Chris,
                        I knew a Chris Brown who worked in Palo Alto for the Recreation dept say 30-35 years ago. Any relation?
                        Art Geddes

                        Comment

                        • #13
                          Re: Northern California office

                          Originally posted by Lisa Salberg
                          There is a doc who has started to form an HCM center - He moved from Boston to Stanford Ca over the summer -
                          I have a call into him now to check status.


                          I will keep you all posted!
                          Lisa
                          Lisa I feel like I am becoming a thorn in your side by bugging you about this and for that I am sorry! This Doctor that moved from Boston to Stanford this last summer, has his practice going by now? I really am in need of this info and would like to start a repore with him to my coming treatment. I understand that bless your heart you are very busy for all of us but if you could see your way clear to give me his name and location I would be in your debt. Thank you Richard Nelsen
                          \"A Misty Morning Does Not Signify A Cloudy Day\'

                          Comment

                          • #14
                            Re: Northern California office

                            Any news yet?
                            Originally posted by Richard Nelsen
                            Originally posted by Lisa Salberg
                            There is a doc who has started to form an HCM center - He moved from Boston to Stanford Ca over the summer -
                            I have a call into him now to check status.


                            I will keep you all posted!
                            Lisa
                            Lisa I feel like I am becoming a thorn in your side by bugging you about this and for that I am sorry! This Doctor that moved from Boston to Stanford this last summer, has his practice going by now? I really am in need of this info and would like to start a repore with him to my coming treatment. I understand that bless your heart you are very busy for all of us but if you could see your way clear to give me his name and location I would be in your debt. Thank you Richard Nelsen
                            \"A Misty Morning Does Not Signify A Cloudy Day\'

                            Comment

                            • #15
                              Re: Northern California office

                              Richard, American College of Cardiology Conference will be in New Orleans this next week. Lisa and I will be there. I don't know that we will come back with any more definite info about the California services, but hang in there. Things seem to move so slowly when you are on the receiving end, while the planning and implimenting end always seems to move too fast to keep up with. Sorry I don't have a better answer just yet. Linda

                              Comment

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