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Just had a myectomy and ICD on 10/14/03

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KathyG Find out more about KathyG
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  • #1

    Just had a myectomy and ICD on 10/14/03



    I am a 38 year old women who was just diagnosed with HOCM in July. I went to a local surgeon who does not specialize in HOCM but I am so far pleased with the results. I stayed in the hospital for 9 days. The only complication was that the initial ICD did not work. They had some trouble getting me back and later that day a bigger ICD was implanted.

    I have now been home for almost a couple of weeks. I am having trouble sleeping because of some discomfort. My chest hurts incredibly when I try to lay in bed, but when I sit in the recliner my back hurts the entire next day. How long do you think it will be before I stop aching.

    Also is it really important to actually see an HOCM specialist. There are no specialists in my area and the inconvenience of traveling doesn't thrill me. What added benefits would I receive?

    I just discovered your message board a couple of days ago and I'd have to say I have read some very useful passages. Thank you for sharing your web site.

    Kathy
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  • #2
    Re: Just had a myectomy and ICD on 10/14/03

    Hi, Kathy. Welcome. A specialist will know more about HCM and will understand the total dynamics of the disease. I hope someone else can give you more info.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment

    • #3
      Re: Just had a myectomy and ICD on 10/14/03

      Welcome to the site. I am glad you found us!
      Where did you have your procedure done?

      I too have ann ICD, they do take some time getting use to.... but in a few weeks you will almost forget it is there.

      Be well,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: Just had a myectomy and ICD on 10/14/03

        Lisa and Renee....thanks for your replies. I had the surgery at Albany Medical Center which is located in Albany New York. Dr. Lewis Britten performed the myectomy. He has a great reputation in the area. The myectomy he performed on me was his 6th on adults. He also said he did approximately 5 on babies for different reasons. I'm glad I stayed home, I was nervous going to another state to have surgery.

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        • #5
          Re: Just had a myectomy and ICD on 10/14/03

          I am glad you did well and are feeling better! Please remember to give yourself time to heal!
          Best wishes!
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

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