Hi,
I'm not in a good mood, been kind of cranky. It's b/c I have this holter monitor on to assess if I am at risk for Sudden Death, which the specialist said that from talking with me and my symptoms that I don't seem to be. Luckily this annoying holter comes off tomorrow. I'm sure everyone's had to wear one though, right? Grr...mumble mumble...
From speaking with the specialist though, I feel like I have been getting the right course of care locally. I'll know more mid week next week when the specialist calls with the echo results and holter. I don't know why, but I'm nervous about the results.
Okay, about the medication. Not much help there. I mean I am afraid to switch from Inderal LA even though it may be the exact cause of my symptoms (i.e. diarrhea and intestinal pain). I did discuss the medication with the specialist of course and told him that I didn't want to switch right now. He was okay with it, but said that he didn't want me to have symptoms (again I liked him). Also, that Inderal LA is a good drug.
He did mention Verapamil or something that started with a K. Anyone know what the K one might have been? Also he mentioned not taking a beta blocker at all. Has anyone ever heard of this? He said you only really need it if you are having symptoms. However, I feel that I would have symptoms without the beta blocker. I mean when a doctor who works where my local cardiologist is switched me to Inderal LA 80mg twice a day, my SOB went away and that is good.
I'm thinking about Toprol XL, however he didn't mention this. It may not be the right one for me.
The Specialist I went to was more attentive and understanding. Right now, I feel that the trip was disappointing and that the same thing I had done there could have been done locally. The only other plus I could come up with is that the nurse asked the right questions and didn't make me feel worse than I all ready do. I mean sure, I know I am underweight, have a poor appetite (unsure if Inderal LA related and yes I mentioned it)...
I do feel better that someone paid attention to me though for a change without feeling scared to fess up the symptoms. I guess I felt comfortable with the Specialist and Nurse whom I've met only one day. The local cardiologist doesn't make me feel as comfortable on some of the times I go there. I haven't felt like he'll listen due to the mention of alcohol ablation, which the Specialist said is not for me b/c I am not on the severe case for that. Perhaps the local meant down the line in case I need it...
As you may tell from some of my posts, I am a nervous patient.
Sorry, this was so long. Hope all are doing okay!
I'm not in a good mood, been kind of cranky. It's b/c I have this holter monitor on to assess if I am at risk for Sudden Death, which the specialist said that from talking with me and my symptoms that I don't seem to be. Luckily this annoying holter comes off tomorrow. I'm sure everyone's had to wear one though, right? Grr...mumble mumble...
From speaking with the specialist though, I feel like I have been getting the right course of care locally. I'll know more mid week next week when the specialist calls with the echo results and holter. I don't know why, but I'm nervous about the results.
Okay, about the medication. Not much help there. I mean I am afraid to switch from Inderal LA even though it may be the exact cause of my symptoms (i.e. diarrhea and intestinal pain). I did discuss the medication with the specialist of course and told him that I didn't want to switch right now. He was okay with it, but said that he didn't want me to have symptoms (again I liked him). Also, that Inderal LA is a good drug.
He did mention Verapamil or something that started with a K. Anyone know what the K one might have been? Also he mentioned not taking a beta blocker at all. Has anyone ever heard of this? He said you only really need it if you are having symptoms. However, I feel that I would have symptoms without the beta blocker. I mean when a doctor who works where my local cardiologist is switched me to Inderal LA 80mg twice a day, my SOB went away and that is good.
I'm thinking about Toprol XL, however he didn't mention this. It may not be the right one for me.
The Specialist I went to was more attentive and understanding. Right now, I feel that the trip was disappointing and that the same thing I had done there could have been done locally. The only other plus I could come up with is that the nurse asked the right questions and didn't make me feel worse than I all ready do. I mean sure, I know I am underweight, have a poor appetite (unsure if Inderal LA related and yes I mentioned it)...
I do feel better that someone paid attention to me though for a change without feeling scared to fess up the symptoms. I guess I felt comfortable with the Specialist and Nurse whom I've met only one day. The local cardiologist doesn't make me feel as comfortable on some of the times I go there. I haven't felt like he'll listen due to the mention of alcohol ablation, which the Specialist said is not for me b/c I am not on the severe case for that. Perhaps the local meant down the line in case I need it...
As you may tell from some of my posts, I am a nervous patient.
Sorry, this was so long. Hope all are doing okay!
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