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Thank you Lisa


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  • Thank you Lisa

    We owe a lot to you, Lisa Salberg.

    As someone who has been involved in many community and professional organizing efforts, I am in awe of this organization.

    The biggest obstacle facing voluntary non-profits organizations like this is internal divisiveness. Has anyone here been in a block club or non-profit that has been free of divisiveness? I know of none. There is less rancor here than I have seen in any non-profit.

    Typically, non-profit volunteer-based organizations are hotbeds of controversy. Unlike for profit corporations, participants in non-profits do not get paychecks. What we get from participation in non-profit organizations is psychological gratification. There is a limited supply of ego gratification to go around. Sadly, this almost always leads to rather vicious infighting. The most difficult job of the leadership is to gratify the egos of the many individuals who participate. The more diverse the types of people involved, the more difficult the task of maintaining group harmony.

    Lisa has assembled an impressive array of diverse resources:

    World leading experts
    500 people who have posted over 8,000 messages
    Authoritative information for anyone who chooses to visit the board
    A real community of people who help each other cope with this disease every day of the year.

    No one cannot make everyone happy. The only way to avoid controversy is to do nothing.

    The real measure of accomplishment is whether one makes the world a better place.

    Lisa has done more for people with HCM than anyone in the country. The world is a better place because of her efforts.

    I have never seen any non-profit mobilize such diverse resources in such a brief period of time.

    I would applaud you Lisa, but somehow applause seems inadequate. I am in awe.

    More importantly, you have advanced the understanding of this killer disease dramatically.

    You have saved countless lives.

    Thank you.

    Lee Tilson
    [email protected]

    Detroit, Michigan
    Proud father of Andy, Meaghan, and Sean

    medical research:



  • #2
    Re: Thank you Lisa

    Wow, thanks Lee... But you bring an important point up. WE have a wonderful GROUP of people that make the HCMA what it is.... each member, visitor, medical advisor, employee and volunteer...THAT is what makes the HCMA a wonderful place.

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Re: Thank you Lisa

      Ditto that Lisa! Thank you
      "Some days you're the dog... some days you're the hydrant."


      • #4
        Re: Thank you Lisa

        And another success for you Lisa -
        Giving us power to learn and find the best treatment
        and answering also personal letters so quickly!!!
        This is another opportunity for ALL of us to tell
        THANK YOU !!!!!!
        Wishes for healh, peace and love!

        Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
        Haifa - Israel.