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Hi everyone.
On August 4th this year, my brother-in-law Paul died suddenly from HCMA. He was just 27 years old.
He and my sister had been together for almost ten years and have a wonderful three year old daughter named Jessica. They had been married only six weeks when he died.
Paul was undiagnosed, so it was a huge shock to us all. I am still so hurt and angry, but am also trying to be philosophical about it. I try to console myself with the fact he felt no pain and that it was over very quickly, as do the rest of my family.
I was just surfing to try and find out more about the condition for two reasons. The first reason was just to understand and learn about HCMA. I feel like it helps to have knowledge of the subject because it has made such an impact on my life.
Secondly (and the main reason) is that I am worried about my niece, and the possibility she may have inherited HCMA from Paul. I have read many of your posts, and it brings me some sort of relief to know how brave you all are, and that it has not stopped you enjoying your lives.
I know that Paul's sister, Alex, has been cleared following tests. Both of his parents survived him, but I am unaware of any testing or diagnosis that may have occurred recently.
Does anybody have any advice?
Many thanks
Simon
On August 4th this year, my brother-in-law Paul died suddenly from HCMA. He was just 27 years old.
He and my sister had been together for almost ten years and have a wonderful three year old daughter named Jessica. They had been married only six weeks when he died.
Paul was undiagnosed, so it was a huge shock to us all. I am still so hurt and angry, but am also trying to be philosophical about it. I try to console myself with the fact he felt no pain and that it was over very quickly, as do the rest of my family.
I was just surfing to try and find out more about the condition for two reasons. The first reason was just to understand and learn about HCMA. I feel like it helps to have knowledge of the subject because it has made such an impact on my life.
Secondly (and the main reason) is that I am worried about my niece, and the possibility she may have inherited HCMA from Paul. I have read many of your posts, and it brings me some sort of relief to know how brave you all are, and that it has not stopped you enjoying your lives.
I know that Paul's sister, Alex, has been cleared following tests. Both of his parents survived him, but I am unaware of any testing or diagnosis that may have occurred recently.
Does anybody have any advice?
Many thanks
Simon
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