If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

septal thinning

Collapse

About the Author

Collapse

shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • septal thinning

    Can someone please tell me what septal thinning is, I cann't find much on it, how do they know i have septal thinning if it's my first echo, doesn't thinning happen later on in the disease, i asked my neice this and for as long as she has had this, i figured she might know but she didn't, she says i know more than she does, so i guess i need to educate her a little,

    Take care Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

  • #2
    Re: septal thinning

    you know i would like to know why i can't get a straight answer, to a question, i posted a question to the cleveland medical advisory board, and they didn't tell me anything, i didn't already know, and it wasn't even pertaining to septal thinning on an echo report, i already knew that the septum and LV was thick in this disease, i just wanted to know, how they knew the septum was thinning on a echo, when it's your first echo, and that's exactly how i worded it, i guess it wasn't meant for me to find out, or maybe it's bad news, and no one wants to tell me, i'm a big girl, after all i'm 46 years old, i would rather know the truth than not know whats going on, i guess i'm just impatient, but this disease is scary enough, but not getting any info is even scarier
    Thank you for letting me ramble on
    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

    Comment


    • #3
      Re: septal thinning

      Shirley, you're saying that on the first echo they said that the septal walls are thinning, with nothing to compare to? That makes no sense to me either. Good luck with your pursuit of answers.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #4
        Re: septal thinning

        Reenie
        This is what it says, Left Ventriclar diameter is normal, Left ventricular systolic function is hyperdynamic with an ejection fraction of 80%, moderate left ventricular hypertrophy and septal thinning, I'm confused also, just thought someone would know what that is
        Thank You for repling
        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

        Comment


        • #5
          Re: septal thinning

          Shirley, I just don't have any answers. Hopefully someone else will read your post and respond to you.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment


          • #6
            Re: septal thinning

            Shirley,

            From the wording you quote I'd say the echo showed your septum is thinner than the "normal" septum. The HCM resources I have only talk about the measurements found in a thickened septum & say nothing about what typical lower limits are on septal measurements--if there are any. Since the septum functions primarily to separate the ventricles & most of the work is done by the outer ventricular wall, this measurement may be considered insignificant. Which would explain why you're having so much difficulty getting answers.

            Aren't you seeing a specialist at the end of the month? If so put this question on your list to ask then. Good luck, Pat

            Comment


            • #7
              Re: septal thinning

              I wonder if maybe they actually meant to write septal thickening on the report but it got transcribed as septal thinning instead. That makes a lot more sense given your diagnosis of 'moderate left ventricular hypertrophy'. Septal thickening could be inferred from just one echo when compared with the normal range in adults.

              Anyway, i hope you get your answers soon
              "Some days you're the dog... some days you're the hydrant."

              Comment


              • #8
                Re: septal thinning

                Now that makes sense to me too. Not a good error to make in transcription!
                NEMC's (Boston) First Myectomy 7-22-2003

                Comment


                • #9
                  Re: septal thinning

                  Shirley,
                  What was your septal measurement and what is your septal measurement now?

                  Lisa
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)

                  Comment


                  • #10
                    Re: septal thinning

                    ok IV septum diastole is 1.6cm, LV internal diameter diastole3.7, LV posterior wall diastole1.2, LV internal diameter systole 1.4, that's all i have for you guys, the echo i had in May said the same thing, i just thought i could get some kind of answer, i thought the septum got thick also not thinner
                    Shirley
                    Diagnosed 2003
                    Myectomy 2-23-2004
                    Husband: Ken
                    Son: John diagnosed 2004
                    Daughter: Janet (free of HCM)

                    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                    Comment


                    • #11
                      Re: septal thinning

                      I would suggest speaking with an HCM specialist. In some cases those with HCM can actually "convert" into a a burnt out stage that thins the walls. A specialist can help you find the base of the mater...and give you treatment that will best suit YOU.
                      Lisa
                      Knowledge is power ... Stay informed!
                      YOU can make a difference - all you have to do is try!

                      Dx age 12 current age 46 and counting!
                      lost: 5 family members to HCM (SCD, Stroke, CHF)
                      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                      Therapy - ICD (implanted 97, 01, 04 and 11, medication
                      Currently not obstructed
                      Complications - unnecessary pacemaker and stroke (unrelated to each other)

                      Comment


                      • #12
                        Re: septal thinning

                        I have it written down along with many more questions, i hope you are wrong, but i couldn't find, anything but that {burnt out} stage, for septal thinning, i just hope they worded it wrong, but i will find out on the 30th when i see Dr. gilligan
                        Thank You
                        Shirley
                        Diagnosed 2003
                        Myectomy 2-23-2004
                        Husband: Ken
                        Son: John diagnosed 2004
                        Daughter: Janet (free of HCM)

                        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                        Comment

                        Working...
                        X