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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • ICD clinic

    well i just got back from the ICD clinic and i asked how often i was being paced, the tech told me, diastolicly 99% of the time, systolic 30%,i was floored, doesn't the pacemaker only kick in when the body needs it, i mean i don't know, since the doctor never asked my permission to pace me in the first place, i have looked on the internet,on pacing and i thought that's what it said, there wasn't any activity well shocks since last time,the tech told me i was having retro something, and ajusted my unit for it, well i hope everyone is doing well today
    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

  • #2
    Re: ICD clinic

    You need to see what you are being paced for. If you are set on a DDD mode you will pace most of the time...if you are on "back up" pacing then you will pace when needed.
    ask what the purpose of the pacing is.
    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: ICD clinic

      Thank You Lisa


      I was never told anything when they did this pacing thing to me. they just did it, i will be so glad when i see Dr. Gilligan, i am in DDD mode i got my read out today from the tech to take with me on the 30th, i figured he would want the latest reading, Can't the heart become dependant on pacing in the DDD mode, that concerns me, it's like that for 6 months now, and the tech said i was set at 60 beat per min , maybe that's why i'm so tired all the time.

      Take Care
      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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