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Hello everyone, I have just signed up and would like to share my experiences. In June this year, my father died suddenly at the age of 56, this was a complete shock for me and all of my family, we never would have thought he would die this way. He was hard working family man who took care of himself and would pay attention to his health by swimming regulalrly 3 times a week and watching his diet.
I have discovered since that my father died of HCM, a condition I had never heard of and have decided to find out what it is and what effect it has on the rest of our family. I have found a great deal of information on the internet and on this website which has been invaluable source of knowledge.
I know my grandmother also died suddenly a number of years ago due what we believed to be an 'enlarged' heart, I think this probably means HCOM, and my guess is that my father inherited the condition from his mother. I also know that my aunt has had a pacemeaker fitted in the last couple of years and to the best of my knowledge she is aware of cardiomyopathy. It has been recommended that we are all screened for this condition but I am not sure at the minute what to do?
I know my father was screened after my gran died, and in the last few years, but they never detected it because he also had a back condition that made the ECG difficult to carry out... I guess I am trying to find answers and work out the best way forward. Any help would be greatly appreciated and I would be happy to answer any questions.
I have discovered since that my father died of HCM, a condition I had never heard of and have decided to find out what it is and what effect it has on the rest of our family. I have found a great deal of information on the internet and on this website which has been invaluable source of knowledge.
I know my grandmother also died suddenly a number of years ago due what we believed to be an 'enlarged' heart, I think this probably means HCOM, and my guess is that my father inherited the condition from his mother. I also know that my aunt has had a pacemeaker fitted in the last couple of years and to the best of my knowledge she is aware of cardiomyopathy. It has been recommended that we are all screened for this condition but I am not sure at the minute what to do?
I know my father was screened after my gran died, and in the last few years, but they never detected it because he also had a back condition that made the ECG difficult to carry out... I guess I am trying to find answers and work out the best way forward. Any help would be greatly appreciated and I would be happy to answer any questions.
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