If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Child ear infections...any studies

Collapse

About the Author

Collapse

SharonBates Find out more about SharonBates
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Child ear infections...any studies

    I was in Kansas last week doing some P/R and set up four our next heart screening event at Kansas State University in Manhattan, KS, Sunday, October 26. While I was there I visited the at the Cotton O'Neil Heart Center in Topeka, KS, one of the cardiac nurses told me about a study a doctor from their facility had done serveral years ago. This doctor (no longer at the O'Neil Center) was trying to determine if a child's untreated ear infections attributed to HCM they later developed.

    Well, of course that peeks my interest. In our family we don't seem to have a genetic link to HCM. Anthony died at age 20 of a undiagnosed case of HCM. At this point we still don't have other family members (living or not) with a diagnosis. Anthony also had some very severe ear infections as a young child. Eventually he got tubes in his ears, but I'm just wondering if that could have had anything to do with his HCM.

    Has anyone of the HCM experts (Dr. Maron or colleagues) done studies that could link untreated ear infections as a child to HCM in early or later years? If not, could we pose the question to them.

    Just wondering out loud.
    Thanks,
    Sharon

    www.AnthonyBates.org

  • #2
    Re: Child ear infections...any studies

    Dear Sharon,

    You know as well as I do that asking questions doesn't hurt anyone. I have no clue, but hopefully someone will at least think about that doctor's ponderings.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: Child ear infections...any studies

      I'd sure be interested in hearing about this as well. I've had two or three severe ear infections every year since i was a kid, in fact i have one right now. Never did have tubes put in when i was young, and lots of eardrum scarring now as a result. I'm curious as to how there could be a link to HCM.
      "Some days you're the dog... some days you're the hydrant."

      Comment


      • #4
        Re: Child ear infections...any studies

        No, I can not help but simply say No... HCM...is HCM...it is genetic and the defect is in the cardiac sarcomere..not anything to do with the ear.

        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment

        Today's Birthdays

        Collapse

        Working...
        X