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baw578 Find out more about baw578
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  • #1

    Why I looked for information

    I was rediagnosed with IHSS (HCM) when I was 17 in a follow up exam. My dad (39) and grand father died from it. My brother (27) and I (21) both have it along with many of my other relatives on my dad's side of the family. The death of John Ritter scared me even more. His problem with his Aorta got me even more concerned especially b/c I had an appointment with my doctor that day. I am glad to see that I am not in the only family affeted by this heart disease.
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  • #2
    Re: Why I looked for information

    Welcome, I think you are new here, aren't you? Don't be afraid to ask questions and feel free to tell us more about yourself. Hope your appt went well. Linda

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    • #3
      Re: Why I looked for information

      Welcome to the HCMA. I hope you find this a great place for information and support. You are certainly not alone. There are many people like you who have a significant family history of HCM. You said your dad died at 39 of HCM? Please make sure your cardiologist is aware of that. You might want to talk to him about what risk factors you and your brother might have for getting an ICD (implanted cardiodefibrillator) put in. There are 5 factors and premature cardiac death of family members is one of them. The others are personal history of fainting, poor blood pressure response to exercise, ventricular tachycardia, and septal thickness. Just talk to the doctor. He'll help you figure all of this stuff out. I look forward to hearing more from you later.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Re: Why I looked for information

        we didn't realize until it was too late that the nurse messud up really bad. The nurse took my dad off his blood thinner and he got a blood clot in the brain. My mom said the doctor cried when he told her that.

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        • #5
          Re: Why I looked for information

          I'm sorry about your dad.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

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          • #6
            Re: Why I looked for information

            Hello,
            Welcome!! and like Reenie, I am also sorry about your Dad. Since I'm new as of last week I couldn't help but smile when I saw your location.
            Joyce L.
            \"We are not human beings having a spiritual experience. We are spiritual beings having a human experience.\"
            Pierre Teilhard de Chardin

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            • #7
              Re: Why I looked for information

              Welcome to the HCMA website and message boards. If you give our office a call at 973-983-7429 we can get your name and address so we can send you out a packet of information that you can share with your family and even your doctor so that you all have a better understanding of HCM.

              Kelly
              Life is 10% what happens to you and 90% what you do with what happens to you.

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              • #8
                Re: Why I looked for information

                Great news. My results came back on my echo and the doc said no change in condition.

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                • #9
                  Re: Why I looked for information

                  Good for you! Linda

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